I keep having hypoglycemic symptoms without actual low blood sugar ?

I was diagnosed with lupus at sixteen and thought nothing of it and now I'm twenty years old and my health has really gone down maybe the past year and a half. I have been to so many endocrinologist and all they end up telling me nothing is wrong go see a ruhmatolgist ? I'm so frustrated I can't take this anymore all that's left for me to do think it might be the lupus ? I thought I had a thyroid issue maybe diabetes, adrenal tumor, adrenal fatigue nothing at all! I made a list of my symptoms down below:

Shaky/irritable/hypoglycemic symptoms without actual low blood sugar ex 96 glucose

Sweaty/night sweats

Headache

Blood pressure spikes

Rapid heart beat

Low blood sugar

Dizzy/lightheaded

Legs ache

Nausea

High blood pressure

Foamy pee

Rashes on legs

Extremely sensitive to heat

Memory loss

Mouth sores

Weight gain

So tired

Stomach ache in appendix area

Sometimes I can't even form a sentence I forget what I was going to see and how I was going to say it.

5 Replies

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  • So who diagnosed you, if not a rheumatologist? All the symptoms you describe could be caused by lupus, so yes, I agree that seeing a rheumatologist should be your next step, if only to start a more aggressive treatment. You don't mention what medication you're on at the moment but whatever you're taking doesn't seem to be making much of a difference, so it needs re-thinking.

  • My family doctor diagnosed me with it by checking my c panels ?

  • Then I assume he needs to refer you to a rheumatologist. In fact, even without the blood results, those symptoms are generally indicative of an autoimmune disorder and there are many. No GP/PCP/family doctor I have ever come across is qualified to diagnose and manage them without some specialist input. Most of the medication for these disorders have to be approved by a specialist - in this case, usually a rheumatologist.

  • Hi NJ,

    I agree that you should be seeing a specialist and receiving some treatment for the Lupus. I have suffered from hypoglycemia all my life and I just carry glucose tablets on me. Do you feel better when you've eaten? For me, I can feel the weakness creeping on and I know I have to eat or get glucose in me or then it's hot, shaky, sick and lightheaded.

  • Hi NJ90210,

    I will echo what other members of the community have said and recommend that you seek a referral to a rheumatologist for further investigations and possibly a change to your treatment regimen to control your condition better.

    If you need more information about lupus, we have a free pack which you can request or download from our website at lupusuk.org.uk/request-info...

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