I keep having hypoglycemic symptoms without actual low blood sugar ?

I was diagnosed with lupus at sixteen and thought nothing of it and now I'm twenty years old and my health has really gone down maybe the past year and a half. I have been to so many endocrinologist and all they end up telling me nothing is wrong go see a ruhmatolgist ? I'm so frustrated I can't take this anymore all that's left for me to do think it might be the lupus ? I thought I had a thyroid issue maybe diabetes, adrenal tumor, adrenal fatigue nothing at all! I made a list of my symptoms down below:

Shaky/irritable/hypoglycemic symptoms without actual low blood sugar ex 96 glucose

Sweaty/night sweats


Blood pressure spikes

Rapid heart beat

Low blood sugar


Legs ache


High blood pressure

Foamy pee

Rashes on legs

Extremely sensitive to heat

Memory loss

Mouth sores

Weight gain

So tired

Stomach ache in appendix area

Sometimes I can't even form a sentence I forget what I was going to see and how I was going to say it.

5 Replies

  • So who diagnosed you, if not a rheumatologist? All the symptoms you describe could be caused by lupus, so yes, I agree that seeing a rheumatologist should be your next step, if only to start a more aggressive treatment. You don't mention what medication you're on at the moment but whatever you're taking doesn't seem to be making much of a difference, so it needs re-thinking.

  • My family doctor diagnosed me with it by checking my c panels ?

  • Then I assume he needs to refer you to a rheumatologist. In fact, even without the blood results, those symptoms are generally indicative of an autoimmune disorder and there are many. No GP/PCP/family doctor I have ever come across is qualified to diagnose and manage them without some specialist input. Most of the medication for these disorders have to be approved by a specialist - in this case, usually a rheumatologist.

  • Hi NJ,

    I agree that you should be seeing a specialist and receiving some treatment for the Lupus. I have suffered from hypoglycemia all my life and I just carry glucose tablets on me. Do you feel better when you've eaten? For me, I can feel the weakness creeping on and I know I have to eat or get glucose in me or then it's hot, shaky, sick and lightheaded.

  • Hi NJ90210,

    I will echo what other members of the community have said and recommend that you seek a referral to a rheumatologist for further investigations and possibly a change to your treatment regimen to control your condition better.

    If you need more information about lupus, we have a free pack which you can request or download from our website at lupusuk.org.uk/request-info...

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