Someone please help me

[Fredabooboo]

I've not been diagnosed with Lupus but been on site for a while as a lot of you lovely people on here seem to have the same symptoms as me..I'm in desperate pain through the night with firey numbness in my feet that in last week or so has moved up my calfs..it's horrific..I have mega pain in my back that's also been getting worse and back left qudren feels numb as does left side of my face ..I have diabetes but surely if it was that it would be paying all the time..but once I'm up in the morning the pain subsides in my legs and feet as if I just had pins and needles to nothing..then off we go again next night..does anyone know please..I shall go to docs but I'm off on holiday Monday.. I don't want them to say I can't fly..I've had a clot in my aorta at top of legs 5yr ago and in lung 20yr ago..on blood thinners so can't be that !? I have psoriatical arthritis..lumber degenerative disease..M.E...please help me in tears now ..sorry guys ..x

[whisperit]

Hello Fredabooboo

Sorry to hear you are suffering so much again. I'm wondering how things have moved on since you posted last? Did your medics provide any further insights or help in coping with your problems? Here's the replies you got then - I don't think I can add much atm healthunlocked.com/lupusuk/... x

[AgedCrone]

If you have had any sort of blood clot you really should see a doctor before flying. .......especially if you haven't declared it on your travel insurance.

Better to miss a holiday than get a bill from an overseas hospital.

[Fredabooboo in reply to AgedCrone]

I did declare them on my insurance hun..but thank you..insurance nearly cost as much as holiday haha..x

[Melba1]

Sorry to hear you’re feeling so rubbish at the moment 🙁. There can be so many causes of these pains and strange sensations you really need to see a rheumatologist or neurologist, certainly to ask your GP or diabetic nurse if it’s related to that?

Hope you manage to enjoy your holiday and get some relief from your symptoms x

[Fredabooboo in reply to Melba1]

Thank you so much..I'm under a rhumy doc but think your right about neurologist..if it were the diabetes surely the pain would be there even when I was up and about which it isn't.. it seems to fade once I'm up..luckily my Tunisian friends are there to look after me if needed ..your a star for trying to help me thank you x

[Belleo]

Hello Fredabooboo. If you have Psoriatic arthritis the pain and morning stiffness etc is likely that. I’ve just got confirmation that is what I have. Are you on any treatment for your PA? I’m not medically qualified but I suggest you find yourself a good rheumatologist. Here in Australia we now have access to subsidized TFN blockers which have proven beneficial for some sufferers. I have felt some benefit on plaquenil for lupus symptoms but it is not enough for the PA symptoms. Hope you can get some help soon as the chronic pain and stiffness you describe is hard to deal with and affects your sleep.