Parts of the UK are experiencing heat waves this week, so I'd like to encourage everybody to take extra care of themselves and others. People with lupus may be at an increased risk of heat exhaustion/heat stroke.
For information and advice about lupus and light sensitivity please read this article on our blog - lupusuk.org.uk/coping-with-...
Thank you for that Paul just had a read at the tips. I had a hot cup of tea earlier and felt like a radiator at full blast so cold water and juice it is..really hot out there today. I can remember my mother keeping curtains downstairs, in the kitchen and living room, closed all day when the weather was like this, she didnt like the heat, made her very tired..Take care folks
Ahaa so did my ma... thought it was strange at the time... but so many other similar things I do now, she did... and similar symptoms... she'd be out of action for days with migraines.. always having a nap or nodding off mid sentence, her hands were completely gnarled, pains coming and going all over and constantly thirsty. But she was an independent fighter... and just got on with it... using some special gel for her hands which was her "magic"! You take care too... and thanks, D
Glad to see this pop up on the pinned posts. Today (28 degrees) my joints hurt, my skin is sore (not sunburn) and I am a puddle of sweat and fatigue. Also muchly resent being stuck indoors. Poo....
For years I've kept my house colder than average both summer and winter and it really helps.. I call it my secret weapon against lupus. Whatever extra I spend keeping the house cool in summer, I save in winter heating costs since it costs more to heat a house than cool it.
If anyone else complains about how cold the temperature in my house is, I just offer them a sweater and a cup of tea!
Thank you for this post! From all the way over in Texas, where the average temp this week has been 100 degrees, these tips are very handy. For some reason, I haven't been applying sunscreen to my body, just my face! Appreciate the reminders.
Thank for this Paul - it's been so hard these past weeks! My skin has been on fire it seems... and he joint pain and exhaustion off the scale. So over it. (the sun I mean).. wonderful as it is too. Am I ever happy?! Seriously though, I shall read up and take it in. Thanks again, D
Thanks looking at Facebook Lupus groups it seems many of us are struggling in the heat Paul_Howard do Lupus UK still stock and sell the cooling towels / similar things that can be used to help cool down ?
Unfortunately we don't sell these any more. We got let down the supplier a couple of years ago. I think that you can get them from a lot of other places though, and probably for a lower price. If you search 'cooling towel' on Amazon it brings up a few options with next-day delivery (if you have Prime).
Thanks for posting this, Paul. I would like to add a tip that has helped me to cope with hot weather. I have found it to be the most effective for me. Use a hand-held mini fan and continually spritz cool water on your face. I have autonomic dysfunction and until I came up with this combination, I could not be outside. My doctors are fans of the method!
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