Feeling awful.: Hey guys. I'm feeling awful today... - LUPUS UK

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Feeling awful.

stacieann1989 profile image
6 Replies

Hey guys. I'm feeling awful today. Got my next appointment with rehumatologist, but not for another five weeks. The past two weeks I've been suffering on and off with very bad joint paint. Just when I think it's going it comes back again. Today I've woken up with the worse in my knees. I have quite a high pain threshold, and this is bad, I feel like crying. I'm staying upstairs Becuase I tried going down before and I was nearly crying having to walk back up the stairs. My partner has to work today so fortunately my dad is coming over to look after my boys. I don't know weather to push for an earlier appointment Becuase I'm really struggling. If you read my last post you'd have known I keep getting tonsillitis as well. Gp out me on antibiotics, but within two today of having them I was getting a horrid pain in my chest occompined by severe heartburn,and eventually I stopped taking them when I began throwing up thick yellow bile. So haven't taken them since last night and the stomach pain has gone so I'm going to have to go back to gp tomorrow and explain that I must have had a bad side effect with the antibiotics. I just feel so crappy. I suffer with mental illness anyway and this state I am in really isn't helping. I haven't been am able to do anything for almost a week now and today is the worse it's been. Also noticed the "molar rash" across my face this morning and a small rash appearing on the top of my thigh. Think I might push for a sooner appointment Becuase I can't even look after my boys. My partner has been doing all the school runs, cooking, cleaning as well as going to work. I'm lucky to have such great support around me. I don't know what I'd be doing now if I didn't have my partner and parents. Sorry, that turned into a long rant. I guess it's just nice to have a whinge to people who will understand what I'm feeling right now

Hope everyone is well and taking care of themselves.

Stacey x

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6 Replies
misty14 profile image
misty14

Hi Stacieann

Sorry to read your having such a rough time. Definitely a good idea to see if you could get a cancellation for your Rheumy. Good luck with your GP getting your antibiotics changed. He also could help you get seen sooner. Hope you feel better soon, it's awful feeling so ill. Keep us posted. X

stacieann1989 profile image
stacieann1989 in reply to misty14

Thanks :-) I will do, take care x

amandalilley profile image
amandalilley

I am so sorry tk hear you are experiencing such a bad day and I hope it may ease for you as the day progresses.

An earllqier appointment sounds like a positive step, especially with a rash, we do, as complicated cases, need to ge aware of bes and cganges symptoms.

I am sending love, hugs and positivity from me and may the universe provide you with the hands strength and encouragement to get through such a difficult day. 👋👋👋👋.

With love

Mandy. X

smithfield profile image
smithfield

Awful to feel so poorly .Try to get an earlier appointment with the consultant or at very least a specialist nurse.

Dan30cr profile image
Dan30cr

Just a question...are you currently on steroids?? As I found I was prone to infection while on steroids... Now I've been weaned off them and although my aches are slightly worse than they were on steroids, I can still function and since I haven't had a single infection. I'm now solely on hydroxy and painkillers. 

stacieann1989 profile image
stacieann1989 in reply to Dan30cr

I haven't had a diagnosis of "active" lupus yet, just inactive. So, not on anything at the moment :-( just lots of pain meds! X

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