Following on from my posts here over recent months:
a HUGE thank you to ALL who have helped me GREATLY to process/interpret my flaring symptoms while my medics & I systematically took a 1 step @ a time approach to the typically complex chronic multisystem gastro + gyn + urology
+ rheumatology problem we've been getting our heads around since early October:
you are ANGELS & WIZARDS & my HEROS🌟🌟🌟🌟I cannot thank you enough 🤗😉
that NHS specialist gyn/urology/gastro physio appt this afternoon went brilliantly: she is the stuff of dreams: EXACTLY what's needed, AND I know we can work together...a highly experienced young woman with incrediblly good communication & listening skills! And a great local NHS networker: she can connect me with the right NHS gyn & gastro consultants...I have homework to do, and then I see this physio again in 3+ weeks....and several more appts will follow: she is in for the long term. She also seems to have a very human heart...these were vvvv intimate subjects under discussion
I see the lady urology surgeon who referred me to this MAGICAL physio next month...I may just let myself hug her...
I am in a state of shock: how can I be this lucky...after such a lifetime of truly madly deeply dodgy luck? There is a lot of rehab to be done, but she says that if I can maintain the other multisystem rehab regimes I've been running successfully for years now (eyes, mouth, nose, spine, legs/feet, gyn, uro, etc etc) then I can do this specialist rehab. Well, time will tell...but this feels like a good beginning
And: HURRAH: the layman's diagnosis you've helped me to piece together seems to be spot on (sjogrens + SLE + EDH affecting viscera & peritoneum, + Rectocele & Cystocele).
+ AH HA: there appears to be at least one wild card (a condition in my small intestine I'd never heard of: more about that another time)
Enough for now...just to let you know a bit...just to say THANKS....😘🍀