i was joining in a good discussion on this subject on the HU vasculitis forum yesterday and decided to follow that up with a bit of searching online. i've been managing my version of inner ear conditions for over 30 years now...having been thoroughly investigated & diagnosed back in the early '80s by NHS ENT (BPPV (paroxysmal positional vertigo) + vestibular neuronitis (labyrinthitis) complicated by various chronic conditions in my cervical spine)...but back then, the NHS hadn't spotted that infant onset SLE was underlying this ENT stuff + all the other multisystem secondaries various clinics were diagnosing & treating me for.
anyway, my search yesterday came up with this link. over the past 4 years there have been lots of us discussing this subject on here, so i thought this link might be useful. the organisation seems an especially good one too (based here in the uk). it'd be interesting to see what experience it has of patients with SLE and vasculitis.