Here I am, forcing myself to look hard at the chronic abdominal cavity symptoms that have been simmering & flaring all my 62 years of what has turned out to be infant onset lupus + early onset hypogammaglobulinaemia & lymphopenia + ehlers danlos hypermobility & sjogrens
A bit of background:
Last autumn an abdominal flare hit me, giving the most severe pain & reaction I can recall. Even my brave early onset crohns-patient husband is alarmed & insisting it's time for my GP & me to get this long-time abdominal stuff better understood. Until now, I've been fairly competently lifestyle managing my abdominal stuff...watching it react to meds prescribed for my other multisystem conditions over the years...willing myself to believe I was coping fine without gastroenterology intervention aside from one NHS op & 2 colonoscopies. Meanwhile, over the decades, other more pressing multisystem problems could be getting more attention from my medics (chronic gastritis & pre-Barrett's oesophagitis with gastroporesis being investigated & treated & monitored by gastroenterology....+ other stuff by other clinics: ENT, oral, GYN, urology (inc complex persistent pattern UTIs+ pyelonephritis), Derm, neuro, immunology, rheumatology etc etc....)
But now it's time to observe my abdominal cavity symptoms more closely & prep notes for consultations...+ I've just had the first stage of current investigations: abdominal ultrasound inc internal wand. My last colonoscopy, 3 years ago, was fine. And the 2 NHS stool lab tests re colon cancer were clear. Am seeing my GP on Thursday for the ultrasound report, but I suspect it will be clear. Have already seen my fab urology surgeon and discussed this, so next month I see a urology physio to check my pelvic floor rehab regime. At some point, I suspect I should see a gastroenterologist experienced in immune dysfunction patients....etc etc. But am so busy attending so many different clinics...argh: not another one?!
Well, I could go on & on, but for now I'm posting this because I'm especially wondering:
Has anyone here noticed symptoms of nausea queasiness & dull pain in response to any type of contact pressure, relatively light & brief or prolonged, on any part of their abdominal cavity?
E.g. I haven't been able to wear even relatively tight clothing ever in my life...for many years even properly performed pelvic floor exercises have given these symptoms...just lying the palm of a hand anywhere on my abdomen from the ribs down brings on various degrees of dull aching pain & queasiness, depending on how my abdomen is doing at the time.
(My crohns husband says he doesn't have these sort of symptoms unless he is in a flare. I've had these symptoms pretty much all my life...and they've been gradually getting worse as the decades have passed...the flare that started last October being the worst)
Am trying to start this thread with just that 1 question...I suspect this sort of reactivity can be related to a barrel full of different abdominal conditions...but I just wonder if my predisposition to this sort of pressure/reactive nausea is common/familiar to many of us?