following on from the great discussion that resulted from my question last week about the flare (with a twist) of chronic abdomen/peritomeum symptoms that set in last october, am prepping for the next stage of investigations: on thursday i will see the gyn/urology physio on referral by my surgeon urologist. then i see urology, rheumatolology & immunology in march/april
unless someone asks, i'm not planning to use this post to go into the complex of chronic conditions that make up the typical pie chart of issues involved in my chronic abdo/pelvic/spine conditions (that was pretty much covered in the thread last week...these conditions involve a typically complex immune dysfunction set of specialties...over the past 30+ years, i've lifestyle managed agogo & been thoroughly investigate by neurology + gastroenterology + urology + gyn + immunology + rheumatology and given reasonable diagnoses + various successful procedures & ops + rehab regimes inc core stability/pelvic floor + pharmaceutical treatments, all of which have combined to help me spend the past 2 years in the least abdo/pelvic discomfort & pain i've had since my 20s)
now I just hope to find out whether anyone else here has been living with/managing spina bifida occulta (and even better, if they have done so with ehlers danlos hypermobility) & lupus since birth? my version of SBO was diagnosed via imaging tests many years ago. My consultants found my lower back was affected structurally & neurologically. i'm intending to mention my SBO to the physio this week...and am just wondering if the effects of all this may be something that gradually reshape to hit us in new ways with age: i'm now 62 and discovering the joys (not!) that age can bring to what had been effectively managed, relatively stable chronic conditions. my impression is that finding anyone else here with SBO could be quite a stretch....but i won't know until i ask!