I had a frustrating rhuemy appointment last week and really looking for advice as what to think?
in Feb I saw the rhuemy and they were definate I had lupus....my understanding its a diagnosis not given lightly.
fast forward to last week.saw a different doctor who said its not lupus as I don't auto-immune conditions. firstly I have graves disease and under went a thyriodectomy so why did I have that if I don't have auto-immune condition? she tried to fob my symptoms off as depression....I am not depressed.
last time my Ana was checked was about 6months ago and it was weakly positive with a speckled appreance. all other bloods are normal.
symptoms I have or had before starting azathrioprine and plaquinel are
molar rash...this has been written in my notes
fingers changing colour in the cold
numbness and pins and needles
low white blood count which doc told me was due o the disease not meds...this was at Feb appointment.
the rhuemy last weeks said how do I no the tablets have stopped the joint pain and it hasn't just gone? what do I do then stop meds to find our? seems a coincidence that its suddenly vanished when on medication as had it 18months beforehand and nothing would shift it.
obviously I'm concerned I'm taking medication and don't want to if don't need to but also worried how 5 doctors who came into room in Feb said its lupus then one last week said no.
what would u do? is it. likely with all other bloods been normal? I just want to know what I have.
sorry for long post