Hi everyone, need to give a bit of history, have SLE,APS for 35 years and had a real rough ride, it seemed like every year I had something new to add, all secondly to the abovementioned, over the first 20 years off SLE I was treated with steroids as high doses.( this was the only treatment available at the time) as a result of this I had developed severe osteoporosis, spine collapsed in several places, Dexter scan showed that I was not even on or in the range, this resulting in me having to have years of osteoporosis treatment. (Think I have had them all to try to slow it down,) costing thousands, but this is the problem now, my stomach and aorta is totally calcified. I would be interested in any one else has had this?? I don't know what it will happen to me, will it cause problems for me, they can't descale me like a kettle, anyone got an idea of what will e if a bit comes away. Sorry for long post, thanks for taking the time to read this.
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