No longer sweating even when over heating......

[tiredmum]

The past few years I have noticed that I have become really intolerant to the heat. Anything over 20 degrees and I get really hot, extremely weak and fatigued and very nauseous to the point where I'm wretching. But I don't sweat. Has anybody else experienced this?

I have mentioned the over heating to my rheumy but he has no answers.

I have to hug ice packs, take cool showers, have plenty to drink, but the only thing that really helps is sitting in an air conditioned room.

[MarkatHMSTC]

Hello Tired Mum,

Could this help, when you are not inside in an air conditioned place?

peakpersonalcooling.uk/

All the best

Mark

I run Hertfordshire Multiple Sclerosis Therapy Centre. Many of our people with MS also suffer badly from the heat and some are testing this system

[tiredmum in reply to MarkatHMSTC]

Thank you, I will look into this

[ajanjua]

Hi

I have the same thing, spoke to my renal consultant and he thought it could be a side effect to the mycleophenolate that I'm taking.

I'm dreading the rest of the summer

Xx

[tiredmum in reply to ajanjua]

I am on MMF too, and this all began once I started it. Very interesting.

I find closing all the curtains and windows during the day helps keep the house cooler. Might be of some help to you to keep you more comfortable.

[ajanjua]

Hi

That's what I'm doing at the moment much to the irritation of my family. It's horrible cus your just sweating buckets , have you tried putting your feet in cold water I'm finding that helps slightly but anything is better than nothing.

Xx

[tiredmum in reply to ajanjua]

Will definitely give that a go, sounds lush

[lnselou79]

I have same problem. I this liter ally have to lay when I overheat. I try to drink as much water as possible and it still doesn't help. I saw someone mentioned cellcept as the cause. It's interesting you wrote that while I've always had a problem with heat, it's been exacerbated over this past year since I started cellcept. I have just gone off of it for other reasons but hoping this will help it. We shall see. Good luck to you.

[tiredmum in reply to lnselou79]

Hi, if you do notice a difference coming off MMF I'd be really grateful / very interested if you could let me know. Fingers crossed for you x

[lnselou79]

I will. Like I said I've always been heat sensitive but this year especially I'm having a hard time.

[Signat]

The lack of sweating is called anhidrosis. I had a thermoregulatory sweat test done as part of my autoimmune work up at the Mayo Clinic in Rochester, Minnesota ( I live in the USA). It showed complete anhidrosis. The autoimmune neurologist told me it is caused by autoimmune autonomic dysfunction. Your autonomic nervous system controls involuntary functions such as sweating, gastrointestinal motility, blood pressure and heart rate control. Many individuals with autoimmune diseases such as Lupus suffer from some degree of anhidrosis and gastroparesis (slowed gut motility) because of the disease affecting the nervous system. My autoimmune neurologist put me on IVIG treatments for 3 months followed by cellcept (mycophenolate). The IVIG made a huge difference in 3 months. I started sweating again and my gastrointestinal symptoms improved. The IVIG is very expensive so the plan is to build up the dose of the cellcept to maintain the improvements from the IVIG. I just had my last dose of IVIG and am on 1.5 gm of cellcept with the plan to go to 2 gm. I am not sure that that the benefits of the IVIG will be maintained with the cellcept but I am hopeful. Anhidrosis can be dangerous in hot weather because you cannot cool down, so be careful and try to avoid overheating. This disease has many ugly faces! I encourage you not to give up and to advocate as much as you can for yourselve.

[tiredmum in reply to Signat]

Hello,

Thank you soooo much. This is so helpful. I shall be paying a visit to my doctors with your information next week.

Nic

[Tazzyg]

Tiredmum, Thank you for writing this. After reading this I seeked help from my neurologist and now I am undergoing treatment. I am finally starting to sweat and will continue treatment.