Hi I have just joined!: I have been on Methotrexate... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Hi I have just joined!

lilstumps profile image
8 Replies

I have been on Methotrexate Injections for over a year and have just been increased. I am getting very bad side effects & really feeling unwell. Can anyone give me some ideas or let me know if they are experiencing the same. I am going to be referred to a different hospital as my local one has done nothing for the last 6 months.

Written by
lilstumps profile image
lilstumps
To view profiles and participate in discussions please or .
Read more about...
8 Replies
magicmarker profile image
magicmarker

hello, what kind of side affects do you suffer?? I too, am on metho,injections 10ml once a week. And I know the side affects seem to be worse than my lupus.

yuck's

lilstumps profile image
lilstumps in reply tomagicmarker

I was on 15 ml once a week now it's 20 ml. Don't know where to start with the side affects but here's a few that are the worse: Headaches & Migraines, Depression, Ulcers in my mouth & sore gums, Unexplained bruising, Back & stomach ache, All joints constantly aching & No appetite but very thirsty. Hope this helps there is quite a few more aswell. Thanks.

Welcome to this Lovely place,,hope you will feel very much at home,,,i do! :) x

lilstumps profile image
lilstumps in reply to

I'm hoping so as I don't have anyone to talk to or moan at lol.

Thanks for making me feel welcome x

Pammy76 profile image
Pammy76

Hi welcome, I hope you will find this site useful and I hope you will find some comfort here x

lilstumps profile image
lilstumps in reply toPammy76

Hi thank you for making me feel welcome, I hope this site is useful as I have no-one else to talk or moan at!! x

Amethyst profile image
Amethyst

Hi lilstumps, I too had terrible problems with Methotrexate which only got worse. I am now on Mycophenalate Mofetil (aka MMF) which is so much better. I have been on it for 8 years now and although I have had some bowel problems, it is so much better than when I was on Methotrexate. Please go to a new rheumy as there are better and more modern drugs available. Really hope this helps x

lilstumps profile image
lilstumps in reply toAmethyst

Thank you so much for answering my question. I really have a lot of stress lately what with one thing or another & i'm sure that doesn't help! I have already booked an appointment for Friday with my GP and going to get her to refer me to a different hospital. My local one is doing nothing! Seems all they want to do is blood tests, cortisone injections & steroid injections in my knees! (Yes they are very painful!) I dont want to keep being prodded & poked or i'm going to turn into a pin cushion!!

Thanks again & I will ask my GP about the drug you are taking x

Not what you're looking for?

You may also like...

Just joined.

Although I've been a member of Lupus UK for 12 yrs, I've never heard of healthunlocked until...
awareness75 profile image

Just Joined

Good morning everyone. I have just joined the group and I am looking forward to reading your posts...

Just joined

I. Have lupus 17 years discoid but its advanced to sle, i also have vasculitis and small fibre...
biddy75 profile image

Well! I just don't know what I have.

Over the last few months I have been on the NRAS forum - chatting away as it was the site I was...
RosieA profile image

Just joined the groupe

Hi all I a new be. I'e had lupus for well over 30 years now. My hobbies are knitting and sewing....
Lupploo profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.