Help! Is it normal to have an assesment at home? How long do they take? Starting to panic now.
I am UDCTD at mo but I think it is progressing towards Lupus now as I have Lung damage.
I have good and bad days, but to be honest never have a normal day, ie before I got sick. My brain is shot and some days I am not fit to be let out alone!
My local hospital is rubbish and I have very little paperwork, I have been reffered to Leeds but am awaiting an appointment.