Hi just an update i asked to have all my care moved to cambridge as my local hospital is dreadful, i got my wish and i am so pleased so far that after 24 years on warfarin with INR all over the place anything from 1.2 / 21.7 a lovely consultant said it was worth me trying rivaroxaban 20mg daily with no more blood test, He stressed he could not guarantee that i would not get anymore PEs or clots but i was still getting them on warfarin so i said lets try it , My only concern was it cant be tested , so the side affects i was told would be nose bleeds or blood in urine so will just hope that i will be okay time will tell he said i would no within 5 weeks. He is seeing me in 4 weeks time to see how things are fingers crossed i can say goodbye to all the blood test weekly i have been having and goodbye to power port as this keeps getting blocked and infected..
Just thought i would keep you posted. x
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rlupus
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