LUPUS UK
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Has anyone had pleurisy and how long did it last?

Hi everyone

I have a number of health problems, Lupus, Fibro, Diabetes, High blood pressure etc and normally suffer a lot with my lungs and kidneys.

I get pneumonia each year and this year have been quite unwell but thought it was bad hay fever, turns out I have Pleurisy.

I left feeling ill too long and have been knocked out with this. Terrible pain in my right lung and exceptionally sharp pain when I breathe.

I am taking 300mg of Amoxicillin per day for 10 days, this is day 5, the pain is less but still in pain.

Should this be gone by now? Not sure whether to see the doctor again.

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Hello there :)

I had plural effusion on my lungs which caused painful bereathing/ struggle to take full breaths. My Rheumy put me on 40mg predisolone for a while till it settled. I have to deliver some bad news here, the pain lingered for almost a month! I even went to the dr about it again to be told that my chest was fine, in fact the effusion looked even better (x-ray).

The reason I was given for this is as the liquid drains from the lining of your lungs it can cause more pain/ discomfort than when the effusion was there! though if it gets too much for you to bear see a doctor or talk to your rheumy to advise you. You may find out it's getting better but increased pain may mean it's getting worse- A good way to tell is how breathless you are feeling.

Hope you feel better soon! X

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Thank you for the update. It does take time for me to get over any illness. I’m not getting awful pain all the time but a dull ache, hurts a lot if I yawn though.

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Yes I have had pleurisy, twice, and it is absolutely miserable, and can take up to 2 weeks for you to start feeling better, this was certainly the case for me. With your having had pneumonia, your lungs have taken quite a beating, inflammatory wise, this does take time to heal. I hope you feel better soon.

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Thank you. I hadn’t realized Pleurisy was so painful and was shouting out in pain at any small movement. Thankfully it is now easing up a bit but still in pain.

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Hi Iona467😊🌸🌿🦋

I have been having periodic pleurisy spells since my 20s and I’m now 67.

It usually lasts 2-3 weeks for me and I’m not treated for it.

Yes it is very painful. Yours is most likely complicated by your pneumonia. I’m so sorry that you’re suffering. I hope it resolves quickly. Best wishes.

😊🌸🌿🦋 🤗💕😘

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Hi honeybug

Thanks for your response. Did you feel very tired and took naps all the time? I hope I don’t get this again. It’s just horrible.

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Hi Iona467

Yes I was tired. I didn’t take naps because I suffer from decades of sleep deprivation. I wish I could have it would have helped my body to repair.

I’m sorry you are going through so much. Hopefully you won’t get it again. Take care Gentle gentle hugs 🤗 love 💕 and kisses 😘

😊🌸🌿💕 🤗💕😘

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What pleurisy treatment were you on, honeybug? Eg My first pleurisy was only treated with antibiotics (because it was assumed to be bacterial due to my predispositiin to respiratory infections). 🍀😘 coco

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Hi COCO😊🌸🌿🦋

My cardiologist first diagnosed me with it at age 19. I’ve never been treated for it just endured it until gone. Im 67 now. Since I was practically a baby with the first spell I never sought treatment because none was initially offered. Frankly I wasn’t aware there was a treatment for it. This is how it has been with almost all of my problems.

However I’m so glad to know that you got treatment for it because it sure does hurt!!!

😊🌸🌿🦋 🤗💕😘

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So true! 😵😵😵😵😘🍀

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😊🌸🌿🦋 🤗💕😘

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I have a bad chest infection and being treated with 300mg of Amoxicillin per day for 10 days.

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Hi again iona...have just added more about tyoes of antibiotics + contacting your gp etc to my last reply at the bottom of this thread....

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I get this several time a year. I used to get antibiotics but it is generally thought to be inflammation rather than infection so now we hit it hard with prednisolone at the first sign.

My last bout took about 5 weeks to go. I hope you soon feel better xx

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Wow several times a year! I have a bad chest infection, knew something was wrong but ignored it. I wasn’t given any steroids which surprised me as I get them for pneumonia.

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I used to get Pleurisy often. Now I've been on aza for 18 months its much better. For me it was due to inflammation rather than infection and a short dose of pred always did the trick, it was the only thing that would help.

It's a case of finding out the cause... generally it's infection, but for us auto immune folk it's inflammation therefore steroids not antibiotics.

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Great reply! V helpful, soootired: mine is a combo of infection (due to my PID (Primary Immunodeficiency Disease)) and inflammation (due to my infant onset lupus). Since rheumatology got me on the right daily lupus meds for me + immunology got me on daily antibiotics forever, i’ve had no more episodes of pleurisy. 😘🍀 coco

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That sounds good.

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I have a bad chest infection, it’s always my lungs.

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Am vvvvvv much feeling for you, Iona...and just want to send you a hug + say how grateful i am to you for this discussion: i’ve been here in this wonderful forum almost daily for 7 years, and this is one of the best pleurisy threads i’ve noticed! Keep strong, stay close to your GP especially if symptoms don’t settle down within the next few days...when my husband had pleurisy after major crohns bowel resection surgery his GP gave him morphine for the pain! this is how i learned that cases of pleurisy need to be treated on an individual basis. For what it’s worth, my pleurisy lasted at least 2 weeks and needed doubled dose of antibiotics...my husband’s pleurisy cleared up in just over a week without antibiotics at all (just his usual prednisolone + morphine)

😘🍀😘🍀 coco

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Still in pain but not so sharply after 9 days and 8 days of antibiotics. Not sure whether to see the doctor again.

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Hmmm...feeling i can only sensibly respond by saying: if i were experiencing this, i’d check in with my GP now, and here is why:

years after my own pleurisy, the nhs realised i have early onset simultaneous SLE & PID (Primary Immunodeficiency Disease)..so now am constantly on daily antibiotics (coamoxiclav) as well as lupus meds...and my immunologist has given my GP & me a protocol to follow when infections breakthrough ie: for 7-10 days add-on broadspectrum SLE-compatible antibiotics, in my case clarythromycin. If i don’t obviously respond positively to this daily antibiotic top-up within 3 days, i must see my GP URGENTLY/&/or go to A&E. Eg V Recently a cold turned into Walking Pneumonia...i recognised the signs, saw my gp right away for diagnosis! 10 days on top-up clarithromycin sorted the pneumonia...now am clearing the associayed sinusitis flare...

But no 2 patients are alike....

Hope you’ll let us know how you get on...😘🍀😘🍀

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You sound like me, Hospital told me to always get treatment early on as I go from first to second stage if anything within a few days.

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Just out of interest: Do you know your immunoglobulin levels? IgG, IgA, IgM? If these are consistently below reference range, it’s significant re infection risk, whether you’re on immunosuppression meds or not. Also, do you know what your WBC, lymphocyte etc levels tend to be?

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No but as soon as I feel a bit better will look at my blood tests results.

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Rheumatology referred me to immunology several years ago pronto when bone profile blood tests prior to IV osteoporosis treatment revealed hypogammaglobulinaemia (low IgG, A, M) + lymphopenia....these deficiencies were of longstanding (started way before i began daily immunosuppression meds)....and these chronic deficiencies explained my lifelong history of recurring + repeating persistence pattern multisystem infections....immunology keeps me in care ongoing and has got what they call my “chronic pockets of bacteria-driven sepsis” under control (sinuses, upper jaw bone, urinary tract + kidneys, GI tract + lungs + who knows where else)....so rheumatology & immunology lead my multidiscipline care.....even without immunosuppression meds as a causative factor, autoimmunity can & does occur simultaneous with immunodeficiency, it’s considered unusual, but it happens!

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Wow, that’s interesting. I’ve always been ill and normally with serious stuff. I have osteoporosis. I suffer mostly with liver, kidneys and lung problems but even a simple ear infection gets serious.

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I think bone profile tests include immunoglobulin levels...and standard bloods monitoring re immunosuppression meds should include all WBC etc tests...so hopefully you’ll be able to check your history....i’m 64 now: took the nhs decades to figure me out....

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Thanks. Took the NHS ages to sort me out too. Mainly my doctor not wanting to find anything else wrong with me!

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Hi Lona, I have Pleurisy at the moment too so feel for you 😔 It's the third time I've had it in the last 6weeks and the sixth time I've had it this year!! My dr normally gives me antibiotics to start which doesn't seem to work so I gently nudge her in the direction of steroids and this normally works after a 5day treatment but I still

get some pain for a few days after and then it returns properly again. It's like the gift that keeps on giving 😂 I don't know if there's anything more that can be done to help it, I'm in a position where I'm not officially diagnosed but am receiving help with taking Hydroxy for symptoms so don't have a specialised nurse to call for advise. My GP doesn't seem to worry about it so maybe it's just me that's worrying too much about it and the longer term affects that it may be having on my lungs if any?

Well wishes, rest up and lots of TLC 🌸

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Wow, that’s a lot! I hope I don’t get it again, I was shouting out in pain when I first got it, couldn’t move without massive pain and that without the pain from taking a breath.

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Yes it really is awful 😔 I find apart from pain relief meds that a hot water bottle really helps and a lavender heat pad too. I normally put one on the front of me and one on the back and find a comfortable position and stay there and not move. Oh the joys!! 🦋Xx

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I use hot water bottles but haven’t got s heat pad, keep hearing about them though,

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