Hi. I wondered if anyone else had had positive (or negative) results with changes of diet and with probiotics. Having done loads of research when my daughter was first diagnosed last year, there seems to be growing evidence (although not yet the 'proof' needed for medical acceptance) of a connection between gut health and auto-immune diseases. One of the most common things that impacts gut health (e.g. leaky gut syndrome) seems to be gluten, with dairy being the next biggest impact, along with other things that are very specific to different people. So my daughter immediately went on a gluten and dairy free diet and also cut out refined sugar (so if things need sweetening, which she keeps to a minimum, she uses unrefined sugar, maple syrup, agave nectar, coconut palm sugar, etc. - plenty of alternatives), and also beef, which seemed to trigger a flare-up for her. Six months on and with the definite help of Hydroxychloroquine plus one steroid injection, her symptoms are now well under control (fingers firmly crossed) and she is doing well. We have no way of knowing to what extent the diet may be helping or even directly causing her positive health, but she's committed to sticking with it in the hope of supporting her body to completely heal one day. Incidentally, she had no symptoms of intolerances, e.g. digestive issues etc., before she was diagnosed with Lupus.
She has also started taking pro-biotics, which again there is some evidence from recently conducted medical tests may support gut recovery and help to address auto-immune disease.
Has anyone else had good or bad experiences with diet/probiotics? If the disease is winning and you have not cut out gluten, would it not be worth trying if there's any chance it could make you better? I wouldn't wait for the scientific and medical industry to catch up as it may take 20 years (after all, there's no profit in it for them) - it certainly won't do any harm except for some extra hassle, which I totally recognise, but it's worth it. If you mainly cook from scratch then it's not too difficult - fresh veg, fruit, meat, fish, potatoes, rice, etc. Cutting out gluten on its own wouldn't be very hard, but with dairy as well it's a bit more hassle. And it is a pain if you're eating out (but restaurants are getting much better at dealing with intolerances etc.). Anyway, I'd love to hear... Thanks.