Lupus flare up

[tillie]

Having flare up.. GP starting me on 40 mg Prednislone for a week from today and then reducing after that by 5 mg per a day. First time doing it at home and could do with a bit of encouragement for the days

ahead. Brain fog at present, can't get to sleep. Would love to hear from someone who has done it this

way. (on Cellcept.)

Many thanks.

[Diagnosed2012]

Hi Tillie, sorry to hear you're having a flare. It can be difficult keeping track of what pills to take. When I was on a reducing dosage of pred, I kept a diary so I knew exactly how many I was supposed to be taking each day.

[tillie in reply to Diagnosed2012]

Will start keeping a dosage diary of preds. Just got a bit scared doing it all so

quickly. Usually it has been a longer process each time after being in hosp.

Idea much appreciated. Thanks

[MargaretGail]

You might find that reducing the dose by 5mg a day a bit quick and need to do it a bit more slowly.

[tillie in reply to MargaretGail]

Will bear in mind about the reducing & not feel too bad if I am unable to do

it as quickly. Thank you.

[magSLE]

Hi, 40mg is a high dose of Predislone, you must have been in a lot of pain/inflammation. When I was on a high dose, I put on weight, sweated a lot, had interrupted sleep. Glad you're on lower dose esp due to high risk long term effects like Osteoporasis. The lower dose I take keeps most of the arthritis pain away & I don't have the other effects anymore. I wish you well x

[tillie in reply to magSLE]

Have to admit these flares don't get any easier & yes I am sweating a lot

no sleep and all its baggage pain/inflammation. Oh well managed to get

down to 5 mg Pred just recently from last flare a year ago so its a bit of a

set back OK. Your good wishes is much appreciated and given me extra

confidence.x