Get rid of lupus

[Nikhilindia]

After typing these words I had seen many things on google some one said she get rid of lupus by naturotheorpy. Does any one know about this

[lorilou8]

After 10 years of having lupus and becoming so disillusioned by convention methods that made me feel worse I turned to Homeopathy and if was the best thing I ever done! No lupus symptoms for 6 years now and all blood work normal. I was so impressed that I studied Homeopathy myself and am now a fully qualified professional Homeopath who works with lupus patients every week. it was the best thing I ever did and I can't recommend it enough.

[Mei4u2c in reply to lorilou8]

Where can you find Hemeopathy? I would like to find out details about that. Please help. Thanks

My_get_better,

[Silvergilt]

Ahem. I hate to come in as a raging skeptic as I've worked with herbs for decades, but no, this is probably a scam. Google will be full of these kinds of adverts, but they're the equivalent of "Please sent this amount of money to this address in Nigeria". All you'll end up with is a big bill. Unfortunately, chronic illness is big business. Many desperate people, tired of struggling against a very frustrating disease (and it could be anything, when I was diagnosed with fibromyalgia in the 90s it was much the same) turn to any possibility they can to try and find a cure. There isn't one, end of. Sure there are things which can help, but more often than not they turn out to be very expensive, and a bunch of vitamins isn't going to cure a disease like lupus.

Naturopathy came into being when the US medical profession wanted to jump on the herbalist bandwaggon (as in the US, herbalism isn't actually recognised as medicine, or wasn't at the time I worked in it). Actually, at the time, herbalists could be arrested and tried for impersonating a doctor - could have been practicing for years, didn't matter, you could face time in prison for even so much as saying "This herb works well for this illness." So regular MDs, sensing an opportunity, took a few courses in herbs and sounded suitably 'alternative' enough to catch onto the trend. It is, first and last, a marketing ploy - and it works. People are desperate enough, they're going to grab at anything, and not look at the pricetag till afterwards. And then the pharma companies caught on, and began patenting herbs - herbs that herbalists could no longer prescribe, but you could now get in a capsule packaged by a big company, or as a prescription from a naturopath.

I'm sorry to be blunt, but I've seen this crop of time and time again (and I've even tried to do this stuff myself, thinking I just needed more herbal training....the amount of money I've sunk into trying to chase a cure makes me blush now). There are things I've found which can help, but they only help ME, because we're all different, and we each have different strategies. It's possible people who are in remission consider themselves 'cured' but there is no one-size-fits-all cure for anything. The same virus of cold in one person affects them just for a day, another person for a week. Same type of cancer kills one person, but another recovers. And in two people with lupus, one person's symptoms are so mild they're controlled with some supplements and over-the-counter medications, while another person is bedbound. It isn't because someone isn't eating their greens, it isn't because someone isn't taking a certain tablet (Homeopathy has been debunked by science, btw, it's quack medicine), it's because life is like that.

So, no, save your money. By all means, do a bit of reading and experimenting, but anything that may want you to sign up to a monthly plan of supplements, vitamins, expensive treatments, or highly restrictive diets is probably a scheme. But I don't at all blame anyone for getting to the point of wanting to try something, ANYTHING, in the hope a magical cure is out there.

[Nikhilindia in reply to Silvergilt]

I have seen on health line that cure is found and successfully tested and is 100% cured in mice

[Silvergilt in reply to Nikhilindia]

I had a long reply typed but my iPad ate it. Probably for the best, as I started talking about how mice are bred specifically for trials and therefore their genes and genetic history is easily traced, medication is collated to work on that particular strain, particular species, and particular results, all of which need to be able to be recreated, and quite often isn't because man, if people had any IDEA how dodgy trials are behind the scenes you'd be horrified....

Ahem. The TL:DR version - I'll take my background in science over a clickbait article online. There is no cure. "They' (whoever they are) may have been able to put a single strain of lupus into remission in a particular breed of mouse which was specifically bred with ONE particular mutation of lupus, but no, sorry, that isn't a 'cure'. It's lightyears - heck, a galaxy away, really - from a cure. If anything it may help scientists actually understand what lupus is, because no one is entirely sure of that at the moment. It's a start, but it's not a finish.

I'm sorry. I get accepting lupus is difficult, and acceptance doesn't have to mean giving up. But you'll drive yourself mad searching the internet for a shred of cure. Someone's trying to make a buck - whether by selling or getting you to click on a headline. (You realise that Healthline is a privately owned pharma company, and therefore they are probably going to capitalise on trying to make as MUCH money as possible on this. If they said to their stockholders 'Nope, got nothing' they lose money. Pharma companies will promise the MOON in trials, because it gets funding. I've got good money that says the trials prove to have more than just merely variable results. I've been in labs, honestly, it's hair raising). And human trials? Let me tell you about a drug called Norplant trialled in the 90's in single mums in the US....*shudder*. Nope. NOPE. I want to see a looooooot more testing before I get excited.

[Nikhilindia in reply to Silvergilt]

Hiiii so u say that the cure is not. Completely found or it takes time for it to reach us

[Silvergilt in reply to Nikhilindia]

Short version? Don't hold your breath. Long version, read what I posted above. I wouldn't trust a human trial at this early a stage even if they paid me. Too much risk, not enough evidence of work in a wider spectrum of ailment.

[NeeNaw]

Hi Hate to burst anyone's bubble but Lupus is "incurable" although it is also "manageable". You could try both sets of methods and you could go into a remission state with both options and equally flare with both, but herbal remedies will not stop the flare if it is coming. Your mental state and where you are within hormonal balances will greatly affect the activity. I have also heard that many people with lupus feel great when they are pregnant but I doubt anyone would advocate staying pregnant to keep the wolf at bay.

I have been diagnosed 20 years and I have looked into every possible method that might (and I emphasize "might") alleviate the symptoms somewhat. I keep abreast of all trials and possible meds that might be available - but there is still no cure.

There are not as many lupus sufferers as there are cancer sufferers and if a natural remedy could cure lupus do you not think that the many lupus associations and Doctors in research would not be looking into it?

Keeping a healthy diet, being mindful of your mental health & knowing when to walk away from possible stressful situations is the best that you can do whilst following your consultant's advice.

Some herbs can interfere with your medication and your condition, so be very careful and always keep uppermost in your mind that lupus (for the moment) is not curable - but every day we move closer to knowing more about the disease, and the more we know, the more we can do.

Gentle lupie hugs xx

[Hidden in reply to NeeNaw]

I don't think doctors would be looking into anything natural to alliviate symptoms or cure anything. Healthcare is big business. If someone discovered a cure for any of the big diseases, healthcare providers would suffer. That will never happen. Doctors want you to be on meds no matter what.

[BARTLETT27 in reply to NeeNaw]

I totally agree , as far that lupus is classes as one of life's incurable . To if there is a cure out there we can wait and see , but we all know that it will be price out of the range for 99% of suffers, so we will never get to see it.

I don't even know if I have lupus, my ANA test came back a couple of points over when they tested me in the early 90's. So if it should have been 0.02 it was.004 . Had all symptoms including the butterfly rash on face which still there.

But instead went down route of fibromyalgia.

But I say if you find something that works for you personally then take it. If you want to call it a cure call it a cure, because at the end of the day. All the people on here are getting through each day by one way after it's all boiled down . That's POSITIVE THINKING . Which ever form we make it up from, we all need it, to give us something to look, hope that tomorrow going to be a better day than today.

Sorry for going on.

Jeff.

[NeeNaw in reply to BARTLETT27]

Hi Jeff you did not go on at all, and yes I agree with you positive thinking and a positive attitude is probably one of our best defences against lupus

[Natura]

I believe the truth lies somewhere in between. I think natural treatments can do a lot. Certain natural anti inflammatories are very powerful, but I have not been able to use because one hurts my already scarred kidneys. Herbs are ver complicated. Not an easy fix in any case. Tried cayenne as anti inflammatory....nice, but then i got terrible joint pain. I have been working on herbal for 2 yrs now. Spending a lot of money on stuff that is suppose to work, and does, but then my body doesn't necessarily respond well. Everyone is different physically, I agree. That is what makes it so difficult to understand. Fantastic that it worked for you though! God bless.

[Nikhilindia in reply to Natura]

Hii good news cure is found and successfully tested and is positive on mice and they. Will make lab trails soon on humans so hope we can get it in a year

[Maya23]

Having had a bad time with the drugs prescribed to me by my rheumatologist, I've had to look elsewhere for things to help control my Lupus (which has never attacked my organs, but has given me a hard time with fatigue, joint pain and nerve pain). Don't get me wrong, if the drugs had helped, I'd have stayed with them, but they made me feel worse. I still take Ibruprofen when I get bad pain and inflammation.

However I turned to natural alternatives to help alleviate some of the symptoms of general inflammation. I drink anti inflammatory herbs every morning. I eat a diet that I've found helps reduce inflammation: being strictly gluten free made a big difference, as well as reducing dairy and sugars. I've adopted mindfulness meditation and other stress busting things to help me reduce my stress. My ESR has returned to normal and my ANA was negative at the last test in December. However, I still have flare-ups and these can be quite disabling at this time of year with the rising UV levels and with my hormonal cycle. Stress always triggers a flare up too.. These things are all out of our control, so I accept that the Lupus will never be cured but I may enjoy long periods of remission. I had 4 months of good health from October-Feb.

I think it's important when trying alternatives, that you go to a very reputable health practitioner. I went to see a highly trained Nutritional Therapist here in the UK. I also see a very good acupuncturist every fortnight, who gives me a good low rate £ and helps to keep my energy stable.

Finding what works for you can be a long journey, but worth exploring. I am currently looking into LDN (Low Dose Naltrexone), a drug that looks promising for autoimmune diseases but is still at the research stage. It has been shown to be affective in halting the progression of MS.

Good luck x

[bam1993]

I am skeptical too......Lupus does go into remission sometimes.....although I have in the past tried a drug called LDN (low dose naltrexone) - there is a lot about it on the net and it is not expensive. It really did help me, with my pain and energy levels-but it most certainly was/is not a cure-I believe that Lupus in NOT curable at present (perhaps in the future-fingers crossed). I had to stop taking it as I was diagnosed with AIH (Auto Immune Hepatitis) in September 2014-and had to go back on steroids - and the two do not mix,as they work against each other.......BUT I am hoping to go back on LDN when my steroids are reduced (I am now on Azathaprine and steroids combined and am starting to reduce my steroids gradually, and I am going to try LDN and Aza together-nothing ventured nothing gained!!!)....Anything we can do to help ourselves has to be good-but do not be fooled by 'cures'.....it is perhaps in remission and will show its ugly head again at some point!!

[Nikhilindia in reply to bam1993]

Cure is found and tested on mice and may come in a year are so check healthline.com

[Whathappned]

Hi

I feel both the idea of using both wisely is the way to go. I do not feel that modern medicine knows it all but I feel you must also take care with natural remidies. Eating wisely, being aware of your body and exercise is very beneficial. I believe in yoga and relaxation and personal awareness. Using either methods of medication should suit the individual and will not work for all.

You need expert opinion before using these as all have interactions and optimal amounts. Alternate therapy is not cheap, not when you have consultations. I would be carefull where you get treatments from too and check their qualifications.

If your seeking NHS care at least it has been through rigorous research and you know their qualifications.

Stay open minded but be careful. Natural remidies can harm as much as modern medication.

[Kate-L]

I suffered from huge swollen joints - knees, ankles, hands, wrists, elbows before I was diagnosed with SLE and the doctors just kept pumping me full of steroids as they just didn't know what to do. In desperation I went to see an Acupunturist. This was 20yrs+ ago and natural therapies were just not heard of. The acupunturist, a wonderful Chinese gentleman, told me he could get rid of the swollen joints, but it would be impossible to cure the underlying cause. I went to three sessions and since then, have never had another swollen joint, but he was right, SLE is not 'cureable' but it can be managed well between you and your health professionals. Anyone who says it is, is probably trying to scam you, so beware. Keep strong xx

[bambialice]

There is no "cure" for lupus. People can go into remission, but you can never cure yourself.

For some naturopathy can help, but please be careful.

[gemmacrutchfield]

Hi, I am a qualified Naturopath and I do believe that there is a lot that can be done to reduce inflammation within the body, that will really affect the rate of flare ups for sufferers of autoimmune diseases.

It does not have to cost lots of money. One of my clients who has had rashes for over a decade has seen a huge reduction in her symptoms (including the overwhelming fatigue) in just a few weeks, just by working on principles of hydration (including fatty acids), looking for her own food triggers (wheat, dairy and nightshade family) - she is already vegetarian, and supporting her adrenal function (vitamin C etc).

Eating anti inflammatory fruits such as blueberries and vegetables can also reap huge rewards. So I say keep trying to work out what your own triggers are and minimise inflammatory foods.

Also keep fully hydrated.

Best wishes

Gemma