So cheesed off with resting...rattling with tablets...donning hot water bottles and sleeping on vibration plates!!!
I occasionally get some energy...mostly due to the frustrating circumstances...I'm told to rest!
Well what if I use this pent up energy and I go for a run...or do something unheard of like dancing the night away with a glass or two of fizz?
should I be scared it will hurt me? It bloody hurts now and I've only walked about...think I need to take control as this " thing" is trying to control me!
If it was human I wouldn't stand for it so why should I listen...do I risk further pain? If it means living...then why no??!!
So not happy today...my legs are cracking to the point I can't walk...tomorrow voila I can walk ( although had no sleep through pain itching and discomfort ) people used to ask me for help...rely on me...now I'm " best resting don't want to cause you unnecessary pain" so frustrating ...fuming...gutted...can't speak out loud so sorry you lot are getting it instead
if anything, hopefully anyone feeling the same will feel free to rant...coz ranting is ok done the right way xxx
Love and gentle hugs xxx