RAYNAUD'S AND HEAT BANDS?

Hi, I have severe raynauds and sle and have tried them but they didn't help me I'm afraid, however we are all different and anything is worth a try. It's miserable when you get cold and then the pain sets in.

Have you spoken to your gp at all about trying something like nifedipine? I used to take it in the early days of raynauds and it did help and got me through some activities that were cold! I used to take a very small does of 5mg twice a day and would only take it a third time if going out at night. I tried the long acting one but had a blood pressure problem with it. It works really well for some people so if you haven't tried it I would definitely ask your doctor. I so understand not wanting to take any more medication and the side effects though.

I have discovered that the key is to try and maintain any heat you already have so I don't wait until I'm cold to heat up because it just doesn't work. Even all the hand and feet warmers won't heat me back up. I use wheat bags a lot but I really have to over cook them to get them to a temperature that makes any difference. I wear gloves and coats before I am even remotely cold and have invested in a very lightweight good quality down jacket that doesn't look too ridiculous in the summer or when I don't take it off indoors.i keep hand warmers (the type that react to the air when you open the packet) in my coat pockets and the sticky foot warmers on every day. They just stick on bottom of your socks and work for up to 8 hours. Happy to let you know the brands if you want to see if you can source them in the US. Wool can be a good fabric as well without being too bulky but warm.

I regularly get skin breakdown and chillblains/small ulcers with raynauds so I do suffer badly so I spend an awful lot of time trying very hard to keep warm

Really hope you find something that works and you have a good time

Hi tennis senior

Have you tried the Raynauds Association website?. They sell items to help with circulation so might include Heat Bands. They also give up to date info on Raynauds treatments which you might find helpful. Severe Raynauds can be treated with an Iloprost Infusion over here. Worth a look!. Hope you avoid the flu and enjoy the Cruise.X

Hi Sarah,

I am in the Uk , and will pop into Boots Pharmacy to ask if they sell them and how much they are. I found the information online, so I know what this is. I have no experience with them , only going to try to find out for you if I can get them for you. HEre is my email address morlobach@yahoo.co.uk

If I can get them I'll contact you directly if you drop me a line. I have Raynaud's as well, but hadn't even heard of these till you mentioned it. It does say on the website they are for this phenomena. heatbands.co.uk

extract: " Welcome to Heatbands™ Hand Warmers, for cold hand sufferers everywhere especially those with Raynaud's and those engaged in sports.........HeatBands™ Hand Warmers promotes a healthy flow of warm blood to the hands and fingers which stops THE COLD, stops THE PAIN and keeps you more able to do things…"

This is only what the company claims, like I said I have no experience with them.

Drop me a line, I will be back this afternoon with information into price and availability.

Morlobach

Heat bands and heat pads as well as hot water bottles are all very good for keeping you warm but so is having a good hearty breakfast starting with mixed fresh fruit and a drink of fresh orange juice for Vitamin C and also cod liver oil to help bones.

I have never heard of heat bands, but there are a variety of products out there to help with Raynaud's. You can find them at raynauds.org and on Amazon. I am fond of Hot Hands, little packets that heat up once you open them and stay warm for several hours. I wrap my hands around them and put my hands in my pockets. There are also heated gloves and other useful products.

So sorry Tennis... I am starting to wonder if I have raynaud's. I never get the flu shot because I would get it. I get the flu every year, but find if I wash my hands and don't touch my face, lips, eyes or mouth..it can be avoided. I had the swine flu in the middle of the summer 5 or 6 yrs ago. I was in NH on a vacation with my family. I washed my hands like crazy and my husband and two daughters never got it when we were sharing a hotel room. It is possible to not get. have fun on the cruise.....I went hiking with my husband in the cold yesterday and it took me all day, a hot shower, 3 cups of hot tea and sitting by our wood stove to warm up. I use to get cold fingers and toes a lot as a child, but finding it really hard to get warm (though I still get hot flashes here and there even though I am done with menopause).... If you don't mind me asking, how do you get tested for raynaud's?

So sorry Tennis...I believe it is genetics as well. My mom died from colitis at 48 suddenly, became septic..liver went...my dad made it to 76 (which is what I hope for) with many symptoms of mild lupus, raynaud's and died from a clot a week after appendicitis surgery where they also found peritonitis. There go, my intestinal problems. I also have marks on my face. I thought it was because of sun damage, but reading here it might not be. I tried to get one rather large spot off with dry ice. Didn't work. Lightened it up a little, but did not remove it entirely. I have people look at me strange a lot because of it. It is what it is. I can't do much more than I tried. I wish people would be less vain. Especially here in Americas. A friend of my husbands was going on about how nice his sisters face and skin was over holidays with me standing in the conversation. It certainly hurt me a little, but this is who I am. My sister wants me to use makeup to cover it up. Oh well.

It is quite unfortunate to be in a disease because of our genetics. I am hoping modern medicine will catch up, and we can manage with the symptoms with as much grace as we can muster. I feel actually blessed that it seems to be mild and might not damage my organs too much( I already have scarred kidneys, trouble with my lungs, etc)..one day at a time...enjoy each day with family. And have fun! That is one of my New Years resolutions for 2015. More fun...each and every day! Take care

Thanks tennis...will try aquaphor....I take 5000 iu of b12 daily...I Wonder if that is too much. I think you piss vit b out. (Sorry) ....I am hoping to have many more years on this planet. I want to be around for my daughters who are only 13 and 15.....I don't take any meds. I take a Natto k sticky blood preventer enzyme daily just in case I am a clotter. No side effects so far, been on for 10 mos. The blood test I just had says no, but two of my brothers have it and are on Coumadin. Can't hurt. Lets laugh more, and enjoy life! Get out there and experience life! Healthier New Year!!!!

I know about hand warmer, i ve used it and thinking of getting them again. Check in amazon they may have it