My cousin told me about a friend of hers with Raynaud's Syndrome - which I have as a result o SLE, and has gotten considerably worse this year - who wears Heat Bands. They are not available in the US, but the UK had them and they are out of stock. Kindly, anyone out there, who has Raynaud's - have you heard of them and more so - do they work? I ordered a month's supply from Ireland. I live in the US in Florida. We are going on a cruise on Sunday and cruise ships are notorious for freezing people. My hands get white and then purple and numb. My toes as well. At this point, I'll try anything other than pills! I will not take any more oral meds. I've had it with steroids, etc. They worked for me for a few weeks, and then, I was back to where I started. The side effects were horrible. Please - if you've heard of Heat Bands and can tell me if they work for Raynaud's -- please email me! Or post!
Sarah