I posted on here a few days ago about me not being able to tolerate the heat and some of you kindly come back and said that you suffered from the same thing.
Well, my rheumy nurse has come back onto me and she is adamant that she has never heard of such a thing with people taking MMF and is concerned that it is the steroids causing the problems !!!!!!
I stopped the MMF for a few days and my upset stomach is calming down nicely (phew), but the heat "thing" is just as bad. She has advised me in no uncertain terms to restart the MMF otherwise I am at risk of a big flare and she will ring me back next week after speaking to my consultant.
I just wondered how many of you suffer from heat intolerance whilst on steroids.
I obviously need to look at the bigger picture.
thanks in advance