Hi all,
I have SLE and Raynauds and have had it for a few years just lately have had my right foot underneath feel like it is on fire very painfull if l put it on a cold floor seems to go away but just keeps coming back any one got any suggestions or if it is connected to Lupus.
Many Thanks
Hi Sharon, I have SLE and Raynauds. The knuckles in my hands used to feel like they were on fire constantly. My foot joints burned some, but my hands were worse. I would put them against cold things to soothe them which would kick in the Raynauds. Long story, short, I stopped eating processed foods and eventually it went away. My theory is processed foods increase inflammation in your body and that is why some parts feel like they are fire. It took a few months, but now I don't feel like I'm on fire anymore. All the best, Calafia
over the years, i've seen quite a lot of discussion on this forum about these sort of symptoms. my feeling is that they can have several different causes.
my version of this sort of thing affects my feet, hands and face. the clinical diagnosis I've been given is simultaneous raynauds & erythromelalgia secondary to lupus. erythromelalgia is called the burning feet condition. the raynauds & scleroderma assoc website has good info on erythromelalgia (EM). the erythromelalgia asssociation (TEA) website has lots more info.
i've been on anti inflammation diet & supplements for over 10 years now, which has definitely helped my version of lupus generally, especially my GI conditions. but my feeling is that this diet has neither helped slow down the progressive worsening of my burning symptoms nor helped reduce my version of simultaneous EM & RP. however, gradually since starting daily hydroxy & amitrip & as of last jan myco, my version of EM has felt somewhat more bearable & manageable...my drs tell me that hydroxy & myco's effect is cumulative, so perhaps systemic treatment for my version of lupus has been helping take the edge of my burning symptoms....
if you haven't already, possibly you'd find good contacts re this burning on the HU raynauds & scleroderma forum - that's where i've found some of the most helpful discussion of these burning symptoms
NB trial & error meds taking is sometimes helpful in diagnosing the causes of this burning, e.g. in the early months of my burning symptoms getting a lot worse several years ago, a rheumatologist put me on the vasodilator nifedipine which is used to treat Raynauds. This made all my lupus symptoms and my burning symptoms go ballistic, so I had to stop nifedipine within just a few days
take care
Hello. After a few years of silently suffering from Raynauds and focussing just on lupus and sjogrens (just haha) I finally had it properly checked out and diagnosed and have been put on Minipress which is a circulatory booster. I swear after one day I felt amazing. No heater and bed socks in summer any more!!
That is well worth knowing if it carries on I will get it check by the GP as l don't have an appointment at the hospital until January now. Many Thanks
Hello. After a few years of silently suffering from Raynauds and focussing just on lupus and sjogrens (just haha) I finally had it properly checked out and diagnosed and have been put on Minipress which is a circulatory booster. I swear after one day I felt amazing. No heater and bed socks in summer any more!!
I have this in both feet and both hands most of the time with a funny bone type pain in ankles, shins, calves and wrists as well as burning pins and needles. I have diagnosis of RA and Hypothyroidism with dry eyes (Sicca) and am waiting to see a neurologist.
It was treated as Raynaud's for a while but as the colour changes in my extremities are quite subtle and the nifedipine made my ankles and legs swell, I stopped taking it and it has worsened. They think it is some type of peripheral neuropathy now.
My RA seems to have been knocked sideways into the long grass but this could change the longer I am off drugs for. I just take Amitriptyline for it now, mainly to help me sleep. I personally think it is inflammation but we will see.
My legs and ankles swell to, I have a problem with my right ankle which is the one I am getting the burning sensation in I am waiting to see surgeon as the foot clinic I have been seeing has told me I need an operation on it, sorry to hear your not feel great either.
I'm wondering if yours might be Tarsal Tunnel? My rheumy says mine is far too diffuse to only be Tarsal Tunnel with carpal tunnel - but as yours just affects one foot it could maybe be this?
I have policeman's heal or { plantus fasica } not sure of the spelling but it is very painful and your heal burns I have gone to bed with my foot in a bucket of ice and the cold does help
I also have had that in the past twice and it is the same foot I am now wonder if this is all connected to it. Many Thanks
Thank you for all your comments it is much appreciated
I have Raynaud's and lupus symptoms and recently got pain in the arch of my left foot making walking almost impossible.doc said it was plantar fascilitis,given foot support to jwear in shoes and some exercises to do.
Hi anbuma3
That's what they gave me but it did not work was on a lot of painkillers but just had to let it go on it's own eventually it did had to have eleven weeks of work with it has I am a school cook and are on my feet for at least 7 hours a day with out sitting down so was a very big strain on my foot but this latest symptom I have never had before for l am hoping it is not going to be a third time of me having it.
Thanks for your support
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