Exhausted tired and weepy

[Bluebud]

Not a good day today. Can anyone advise on how to get over feeling so exhausted and tired. Can't put one foot infront of the other felling really dizzy. The tiredness is worse than the pain today. Feeling sorry for myself as I feel trapped having this Lupus and RA.

[deredhead]

I wish there was an answer but I have weeks on end that I can barely walk I am so exhausted. I am trying to improve my diet hoping it will help. Good luck

[Wendy39]

Hello. Sorry to hear that you are feeling so unwell and down. Can I ask how long you have had lupus and what medication you are on? I felt like a walking zombie with the fatigue last year, for months, up until my diagnosis in November. It also felt dizzy and sick with it. I lost my appetite too. I have been on 2 x 200mg of hydroxy since then and it has slowly had an effect on all my symptoms including the tiredness. It is still improving now, some 10 months on. I had read on here that it can take a year to reach it's full effect. I still get bad days where indeed to nap etc and I have to decide how I use my energy - I prioritise, but I feel that I have finally come out of that flare and I am learning to cope with lupus and accept it. Also, I am border line anaemic - GP still argues I am within normal range, but only just and the rheumatologist said she thought I needed a boost, so I have been taking 210mg ferrous fumerate once a day for a month and I think that is helping too. Sorry that I am not able to offer any real advice or help. But I wish you well and hope that you find a way of getting through this rough time. Bets wishes.

[misty14]

Hi Bluebud

There isn't a lot we can do about the fatigue except look after ourselves extra specially when in a flare and it will improve. What treatment are you on?. Do you take steroids?. Maybe a short course of them might help with the pain, dizziness and fatigue?. I hope you feel better soon, sorry you have RA and Lupus, one is enough to deal with!X

[Gillyg]

Control with medication will give some relief but extreme fatigue is the normal. Everyone seems so young on here with new diagnosis. I have so much experience after 30 years but still learning every day. Listen to your body you can't fight the tiredness and don't feel guilty about resting. Be careful if you go out feeling like this you won't be in control. Ask for help it's ok. I still push my self even though I should know better it's our nature. But I don't work and at least I get chance to rest more than then when I did. I look after my grandchildren twice a week and won't stop but when I go home I feel exactly like you do and the pain is bad all night so you see it's pushing your body to the limits that do it. For me at my age I wouldn't give up looking after them they are what gives me the pleasure in life. I have SLE,FIBRO AND SS. I have had 3 mini strokes but I will never give up fighting this dreadful illness. Rest rest rest and enjoy the days that you feel well. Not to just sound negative but I do travel a lot on holidays and have been to lots of overseas country's. I get out of life every scrap I can. I do far more than I thought I would ever do 15 years ago. Hugs. Xx

[Hidden]

Hi - so sorry you are feeling so low and awful. I can relate because I have RA and other atuoimmune extras so fatigue is very much part of the package. I'm presently off all RA meds so I put the extra fatigue and low feelings down to this.

But if you are on meds and still feeling this bad I think you should push for a drug review because, with two overlapping diseases, it is important that the drugs are controlling things and fatigue is a sign of active RA and Lupus. If you can't access your rheumatologist or rheumy nurse then you could try your GP and tell them how bad things are so they can hopefully help you address this. Twitchy x

[KarenC]

Hi bluebud, was the same a few weeks ago. I know it doesn't feel like it but it will pass. Friends on here helped massively just by supporting and understanding how I was feeling. Hugs xxxxx

[lupie46]

Sorry

[naturelover1010]

Hi,

I'm new to the abbreviations of illnesses. Could someone tell me what RA & SS stand for?

I suffer from Sarcoidosis, Sjogren's Syndrome, Raynauds, Chronic Fatigue Syndrome, Depression, Memory Impairement & Hiatus Hernia. Oh and I almost for Chronic Neuropathic Pelvic Pain.

The symptoms I find worst are the neuropathic pain & fatigue....each day is a surprise in terms of what other symptoms will flare up......but each day is such a struggle.

My cocktail of medications make sleep from 11pm-3pm the next day.....but am glad I'm knocked out by my medications as it's the next best thing to death-my faith and cats stop me from acting in my suicidal thoughts.

I new to writing online about my illnesses and this is my first post. I hope someone can answer my question.

Thanks,

B