Just exhausted will this ever end!???!!!! - LUPUS UK

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Just exhausted will this ever end!???!!!!

Sara_A profile image
6 Replies

I’ve been off sick from work following a flare up for about 2 wks now and each time I think I might be feeling better and could return to work ( I only work 2 days a day 10-4 so not a lot) I just feel rubbish again.

Today I woke with yet another headache so got up late from sleeping it off and now have only been up for 2 hrs and can hardly stay awake am sooo tired!!

What is wrong with me!!!! (I know it’s the sle and aps!) but still!

Is this ever gonna get any better, I wish I’d not gone off work sick as now I feel like I’m never gonna be able to go back now I’ve stopped!

Sorry for moaning about nothing anyone can really help with!!

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Sara_A profile image
Sara_A
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6 Replies
eekt profile image
eekt

It's horrible but you just have to let your body get all the rest it needs. Take comfort in relaxing treats like a massage or steam room day if you can, and eat well mo xxx

Ladyuponthelake profile image
Ladyuponthelake

I'm really sorry your feeling so tired. I totally get your aggravation and you want your old life back! I feel the same at times. But I'm trying to learn to accept what I can and can't do. And like eekt said, be good to yourself and relax. Treat yourself well. You deserve it! Your poor body is sick and it needs to regenerate.

Gentle Hug to you

🌻🧚‍♀️🌼

Sara_A profile image
Sara_A in reply to Ladyuponthelake

I’m seeing the consultant as urgent this wk but I don’t know what he can really do!? I’m pretty much on max treatment for my current condition and it’s the fatigue and tiredness that’s the worst part of it all and there’s nothing he can do with that.

I just don’t feel up to working at the mo and I feel really bad about it as I’m a nurse and all my clinics are having to be cancelled with no other apps to be offered to them as nobody else specialises in what I do in the surgery. Half my work can technically be done by someone else but there isn’t anyone else to do it! So this is adding more pressure to the situation. Work are really good about it and very supportive and have actually urged me to get signed off for longer and get better. As at the mo I’ve just been taking it week by week. I just worry if I give in I’ll never go back and maybe I shouldn’t have gone off sick in the first place and just battled thru it as now I just can’t seem to get going again.

Sorry long moan!

Ladyuponthelake profile image
Ladyuponthelake in reply to Sara_A

Dear Sara,

I know exactly how you feel, I'm not sure if I said in my last post that I just had a year or more really of what you're going through. I gave up my family business of 17 years. It kind of happened for me. I couldn't fill orders and other personal stuff happened. So I hid in bed with fatigue. I completely understand the torment. PM me if you want. There will be light at the end of the tunnel, but you have to walk through the tunnel and just now you can't even do that. You must rest so you can see clearly. I know it's not what you want to hear, but your body is screaming at you.

Please feel free to contact me.

A big gentle hug to you.

❤🧚‍♀️🌸🌼🌻

Ladyuponthelake profile image
Ladyuponthelake in reply to Sara_A

And don't ever be sorry for moaning, who will know your hurting if you don't?

Wadekirstyn10 profile image
Wadekirstyn10

Unfortunately I'm at the stage where I've had to give up work because I would do half a day and them be bed ridden for the next 2 weeks. It was a really tough decision as I wanted to keep my independence and leaving my job meant that I had to move back home with my mum. In the long run though this has benefitted me greatly. I still have flair ups, but not to the point where I'm hospitalised with them any more. It's also helped with my fatigue as now I'm only sleeping 10-12 hour's a day instead 14+ hours a day. For me I've found ways to help me cope with the pain,but the fatigue is the worst part of the illness for me.

Maybe you should think of having an extended period of time off (if you are able to) and just see how you feel after that.

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