Contraception: Hi everyone. Just wondering if... - LUPUS UK

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Contraception

Glouise91 profile image
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Hi everyone. Just wondering if anyone could help me. Before my diagnosis of SLE I was on a combined oral contraception with no problems. When I was diagnosed I was switched to a progestogen only pill which I hate (PMS, cramps, irregular heavy bleeding-for over a year now)!! I've gone back to my gp and they have said they won't switch me back despite the fact my antiphosolipid bloods coming back fine. Seems like such a minor problem in the scheme of things but it's just something else I don't want to be dealing with. Anyone have any information on this? Thank you xxx

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Glouise91
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AlisonM profile image
AlisonM

The combined pill may make your lupus worse. That's prob why they wouldn't change you back. As lupus can be related to hormones (I think my started when I went on the pill- diagnosed 3 years after!) it's also why some peoples symptoms improve in pregnancy due to the different hormones. It's hard, don't have an answer for you I'm afraid. Could you try a diff type of pill? I had to try 2 diff ones when they changed mine, you prob don't want to hear this but now I'm not on any pill, my fatigue is less & have less flares.

Hope you get an answer soon xx

sarahxxxx profile image
sarahxxxx

I would never advise the pill for contraception. I was on the depo provera injection for 11 years but was advised to come off it because of the risk of osteoporosis. I have been on the implant for a year and have had no problems, no pains, no periods and it doesn't interfere with any of my treatment - rituximab, steroids etc.

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