Hi all. Just after the birth of my fourth child, I developed a slight raised rash on the side of my nose. At the time the doctor said it was probably hormone imbalance which I could quite understand at that time. About four months later, I noticed a rash appearing on the side of my face, which then began to spread and appear on other parts of my face. As the rash was being investigated, it took probably about four months to be diagnosed with Discoid Lupus and then later blood tests came back that it was "possible" SLE. During this period I was extremely tired and I seem to suffer one thing after another with joint pains, cramps in my back at night time, freezing hands. The rash really took its toll on me as it was so noticeable and I became very depressed, and I put the other symptons of the joint pain, tiredness as part of my depression. I eventually was given steroid cream for the rash and after a period of it being extremely angry looking it did eventually fade. This made me feel so much better and I was able to come of the anti-depressants. Since that time, four years ago, things have been pretty quiet, I still have days of joint pain which usually start with the feeling that I am coming down with a cold. However, the joint pain may only stay with me for a couple of days. Back in November last year, my periods became very erratic and extremely painful, I have had four children and the pain was like labour contractions. I was tested tfor infections etc and all the results came back clear. I didn't think that Lupus may be a factor in the change in my periods and still don't as I didn't actually mention Lupus to the doctor at that time. About 3 months ago, I noticed a small area of a rash on my face so I went back to the doctors and had the screening test for Lupus and the results came back that I had SLE Lupus. The rash has been controlled with steroid cream and I now have an appointment with a Rheumatologist. Some of the other symptoms I have experienced is tummy cramps and what may be considered as IBS. This week I have experienced the freezing cold hands, then later that day flu like symptoms, aches and pains and lethargy. However today I am feeling OK. Part of me wonders whether I have Lupus and perhaps it is a very mild case as I am not taking any medication.
If any of you can give me some advice, especially on how I handle the Rheumatologist appointment. I am a person who very much masked over things especially if on the day everything is hunky dory - if that makes sense.
Thanks to you all in advance!