I have been diagnosed with lupus (skin and query SLE), joint hypermobility, and reynaulds. Since Christmas I have had recurrent infections (tonsils, ears and kidney) and since then have felt really ill - tired, headachy, skin rash up on back and face and also face feeling very swollen with it. Mobility affected to such a degree that at one physio/occ therapy appointment I was given a stick to aid walking (felt i had hit a really low point that day)
Anyway in the end rang up my lupus nurse and was in floods of tears trying to explain how ill I really felt, she suggested bloods. Got the results and guess what all normal.
She was going to speak to a consultant and get back to me. I did end up saying to her, if not lupus then I could really do with knowing what on earth the matter is with me. What I suppose I am trying to make out is can you have Lupus with normal bloods - i have all the symptoms (lupus diagnosed by dermatologist), tiredness, aches and pains, rash on face, ulcers just inside my nose and sometime mouth is so sore can barely eat or drink anything too hot.
Thanks for reading.
Any advice gratefully received. xx