Body shaking all our it look likes im on a vibro ... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience.

willowwag profile image
8 Replies

Hi all, well being it was nice outside decided to sit a watch hubby paint the fence...after a hour went indoors and started shacking whole body quivering like if i was on a vibro plate...my 11 year old daughter said mam u ok you quivering.. With no control hands and body, it was so noticable....is this my steriods, meds etc or just maybe extreme fatige wow it is very weird...has anyone ever experienced this,,, the quivering is still going on but a little less intence hence i am now able to ask my favourite people x you lot x

Written by
willowwag profile image
willowwag
To view profiles and participate in discussions please or .
8 Replies
Signlady profile image
Signlady

Hi Willowwag

Sorry to hear you've had 'the shakes', it is alarming I agree:)

I have suffered constantly with lupus/ME for many years and always get the shakes when I'm seriously relapsing so this could be what you're experiencing although you should still get checked by GP.

My muscles visibly vibrate ( ESP thigh muscles!) it's alarming to watch. I know it's my nervous system, exhausted & get to bed & rest!

I hope you stop shaking soon !

Take care my friend xxx

a_Scot profile image
a_Scot in reply toSignlady

Signlady wrote : "My muscles visibly vibrate ( ESP thigh muscles!) it's alarming to watch."

fasciculation ? , e.g. ...youtube.com/watch?v=X5YjSJs...

candyellie profile image
candyellie

Hi Willowag,

I also get this and particularly my legs and left arm. This is also my sign that I am about to be very unwell. I drop everything and go into rest mode. Also, contact the rheum nurse to see if meds can be tweeked. First time it happened, it terrified me but I guess I am getting used to it like all the other stuff. Sending my best wishes that you feel better soon.

a_Scot profile image
a_Scot

willowwag wrote "Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience."

Yes, but I felt as if I was freezing at the time ...

[quote="wikipedia.org/wiki/Chills"] Shivering also occurs along with chills because the patient's body produces heat during muscle contraction in a physiological attempt to increase body temperature to the new set point.

Causes

Chills are commonly caused by inflammatory diseases.[/quote]

en.wikipedia.org/wiki/Chills

willowwag profile image
willowwag

Hi all thank for your posts, wow it felt so strange...its stoped for now fingers crossed im seeing my consultant on the 11th so i will be telling her about it...maybe it was me doing to much and being really hot...im just so glad its stoped for now xxx thank again x

Larrylad123 profile image
Larrylad123

Hi my daughter also got the shakes all over when she had her first episode of lupus it was terrifying for her and she then was left with muscle twitching for a few months! I hope it soon stops for you.

Larrylad123 profile image
Larrylad123

Hi willowwag

My daughter has lupus she got the shakes when she had her worse relapse, which I hope never happens again for her, I hope it soon stops for you!

roobarb profile image
roobarb

Hi willow wag

I am sorry to read read about your scary experience. I also get tremors associated with worsening lupus symptoms.

I was wondering if sitting outside had anything to do with what happened to you. Were you in the sun, or was it a very hot day? Both of those effect my lupus.

Take care & best wishes. X

Not what you're looking for?

You may also like...

Video Capillaroscopy! what is this? has anyone had this done? what is the purpose of it? can not find much information on the internet

My first nhs appointment at guys on the 11th December. I am now due to go back on the 4th January....
Lisalou19 profile image

A bit of a random one, has anyone had to invest in a decent mattress? I wake up in so much pain, could this be the cause 😏

If I lay on my sides I wake up with crippling hip and knee pain, lay on my front I get crippling...
Lisalou19 profile image

Don't think my thermostat is working!!!

Hi all hope your all keeping well I cannot warm up today at all, I'm colder than when the...
Daisy78 profile image

Social Support

As a new member, this is my first blog, even though I was diagnosed at fifteen with SLE. I was...
SLE15 profile image

New Here: Does anyone find a body pillow helpful for lupus & fibro pain?

Hi, First post so I hope this is okay to post here. I have had systemic lupus and fibromyalgia for...

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.