Body shaking all our it look likes im on a vibro ... - LUPUS UK

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Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience.

willowwag profile image
8 Replies

Hi all, well being it was nice outside decided to sit a watch hubby paint the fence...after a hour went indoors and started shacking whole body quivering like if i was on a vibro plate...my 11 year old daughter said mam u ok you quivering.. With no control hands and body, it was so noticable....is this my steriods, meds etc or just maybe extreme fatige wow it is very weird...has anyone ever experienced this,,, the quivering is still going on but a little less intence hence i am now able to ask my favourite people x you lot x

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willowwag profile image
willowwag
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8 Replies
Signlady profile image
Signlady

Hi Willowwag

Sorry to hear you've had 'the shakes', it is alarming I agree:)

I have suffered constantly with lupus/ME for many years and always get the shakes when I'm seriously relapsing so this could be what you're experiencing although you should still get checked by GP.

My muscles visibly vibrate ( ESP thigh muscles!) it's alarming to watch. I know it's my nervous system, exhausted & get to bed & rest!

I hope you stop shaking soon !

Take care my friend xxx

a_Scot profile image
a_Scot in reply to Signlady

Signlady wrote : "My muscles visibly vibrate ( ESP thigh muscles!) it's alarming to watch."

fasciculation ? , e.g. ...youtube.com/watch?v=X5YjSJs...

candyellie profile image
candyellie

Hi Willowag,

I also get this and particularly my legs and left arm. This is also my sign that I am about to be very unwell. I drop everything and go into rest mode. Also, contact the rheum nurse to see if meds can be tweeked. First time it happened, it terrified me but I guess I am getting used to it like all the other stuff. Sending my best wishes that you feel better soon.

a_Scot profile image
a_Scot

willowwag wrote "Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience."

Yes, but I felt as if I was freezing at the time ...

[quote="wikipedia.org/wiki/Chills"] Shivering also occurs along with chills because the patient's body produces heat during muscle contraction in a physiological attempt to increase body temperature to the new set point.

Causes

Chills are commonly caused by inflammatory diseases.[/quote]

en.wikipedia.org/wiki/Chills

willowwag profile image
willowwag

Hi all thank for your posts, wow it felt so strange...its stoped for now fingers crossed im seeing my consultant on the 11th so i will be telling her about it...maybe it was me doing to much and being really hot...im just so glad its stoped for now xxx thank again x

Larrylad123 profile image
Larrylad123

Hi my daughter also got the shakes all over when she had her first episode of lupus it was terrifying for her and she then was left with muscle twitching for a few months! I hope it soon stops for you.

Larrylad123 profile image
Larrylad123

Hi willowwag

My daughter has lupus she got the shakes when she had her worse relapse, which I hope never happens again for her, I hope it soon stops for you!

roobarb profile image
roobarb

Hi willow wag

I am sorry to read read about your scary experience. I also get tremors associated with worsening lupus symptoms.

I was wondering if sitting outside had anything to do with what happened to you. Were you in the sun, or was it a very hot day? Both of those effect my lupus.

Take care & best wishes. X

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