My daughter has developed SLE Lupus after taking ... - LUPUS UK
My daughter has developed SLE Lupus after taking the cervical cancer vaccine. Has anyone suffered the same fate?
So sorry for your daughter that must be devastating for you and her. Getting a lupus diagnosis opens a whole world to the unknown but this is a great site for comfort and reassurance. Im sure with the right treatment and support she can live a near to normal life. Im a mum too and i worry that my children will develop lupus it must be a shock for you and heartbreaking to accept. Im just curious have the medical profession made a link between this vaccine and lupus? Or was your daughter ill with numerous symptoms for a while? Im interested because i know many of us wait years for a diagnosis me included i had years of various symptoms and blood tests positive for autoimmune but no diagnosis until my thirties. I often wonder what triggered lupus as noone in my family had even heard of it. I hope someone here can offer you some more advice on this. Wishing you and your daughter well x.
Hi, thank you for your encouragement and reassurance. Actually my daughter was a bubble of health and energy up until June 2012. She was very sporty and loved life and never in her life had any serious sickness and barely ever got a cold. After her 2nd dose of the cervical cancer vaccine, her change was immediate and she began developing one symptom after the other,until her last dose in December 2012, following which she developed the butterfly rash. I did my research and found it was lupus in January 2013 but doctors kept telling me I was wrong. They diagnosed her with everything except Lupus until she was admitted to hospital a 2nd time in March 2013. Sadly no one in my family has lupus and we had never heard of it, until I had read about it myself online. She is still so young with a full life ahead and in my heart I am 100% certain that this vaccine triggered off this for her 
I am sure as a mum you are deeply concerned about your children developing and it must be very heartbreaking for you living with this worry daily! I am devastated and so heartbroken i dont think i can explain well what I feel, but i cant rest until I find out if others have developed Lupus after taking the same vaccine and I need to make contact with them to discuss this further. Please wish me luck!! Wishing you 'good' health as much as can be to you xx
Hi, my daughter is21 now, but she was also diagnosed with lupus. She had the 3 rounds of gardisil. I don't know if the lupus is caused from it, but she was diagnosed afterward and the symptoms did all start afterwards. Tonight she was at er with Chest pains,seemingly associated with the lupus.
Hi, I've just picked up your thread. Just wondering how things are now with your daughter. Have you discovered anything regarding a link? My daughter was 12, had one dose of gardasil and presented serious symptoms less than two weeks later - lupus was diagnosed soon after that. She too was super fit, sporty and very healthy. X
I am the daughter she was talking about. i was unaware she ever sought out help for these things. my mom i awesome. I am 23 now and still have my issues, i have a heart issue as she mentioned before and my bones and joints sound like rice krispies but i am doing ok. I have successfully had 2 sons and am getting married i got all 3 shots so please never let her get all 3 if i could go back i'd stop myself from getting them it was the 1st year it was released and it wasn't as widely known about.
Thank you,
She just had one dose - hasn't had any more, and I'm very reluctant to give any vaccinations now. So pleased to hear that you're doing well. It's a tough and very unpredictable illness and I find it so hard seeing my daughter struggle some days.
Hi! I saw your post and felt obligated to share. I'm 24 years old and when I was 15 I got the Gardisil vaccine. I got my first one on a Friday and that entire weekend I was SO sick with arthritis pains in my arms and legs. I couldn't sleep and I called my doctor in the middle of the night thinking I had blood clots or something. My entire body ached and I was experiencing night sweats. I had never experienced pain like this (or arthritis). I was super healthy and played sports. No one in my family has Lupus or even knew what it was before me. Anyway, I got the second shot and hours later I was rushed to the ER for an "allergic reaction". That was when my Lupus symptoms began to be full blown. My hair started falling out, I had horrible arthritis, body aches, fevers, headaches, major fatigue, nausea, butterfly rash, chest pain, etc. It has been a 9-year nightmare since. I never got my 3rd shot of Gardisil because I was already way too sick at that point. I've been on chemo drugs 4 times now for 1+ year. I've been on cortisteroids, NSAIDS, etc. Gardisil ruined my life.
I wish you luck, robpeco. To possibly, get an autoimmune condition, because you were taking safety measures for the future, is awful to say the least. There is always speculation about some of these vaccines, ie....MMR. Makes you wonder sometimes if we are best left to our own devices. I hope your daughter stabilises soon with adequate meds. Let us know if you do find a connection.
Thanks 6161, will keep you all posted. Her doctor is actually agreeing with me about this, however, it has to be proven. So taking it step by step to do things right!! Though silly me, I'm so angry at myself as I have always believed in leaving things in Nature's hands and not mess around with it - cant stop kicking myself for going against my instincts and giving her the vaccines
I am so sorry to hear about your daughter. It is so unfair that it was in trying to prevent getting a cause of cancer, this has reacted with her body to cause Lupus. I have not heard of this before and it's been in the childhood immunisation schedule for a number of years now. This drug is what is called black triangled. This means all side effects have to be reported. So if there have been more cases they will be watching and collecting data. I wonder if it was through HPV or one of the substances that it is suspended in?
I really don't know what to say. I'm busy listening to my very active daughter downstairs and hope she never gets this. (Although if I have to listen to Puff the magic dragon on the saxophone much more she will be gagged and tied up lol)
Hi robpeco
Please don't beat your self up about getting your daughter immunised. You acted for the best. Immunisation against Cervical cancer is such a good thing for most girls. Too many women have had to visit colposcopy for invasive treatment to remove cells from their cervix. And as we know in some cases it doesn't work. Almost all cervical cancers are related to HPV and vulval cancer is on the increase. The operation for vulval cancer is awful and often needs repeating.
Until now I have not heard of this happening to anyone and I'm sure the incidence will be very low. Although no I know that is no help to you but you where doing the right thing.
I had to decide wether my son would have the MMR during the scare. I opted for the MMR and in doing so he was protected when the outbreaks started. That research has been discredited and legal action taken against its author but it caused a lot of worry for us parents.
We don't see much death from tetanus, measles, diphtheria now but that's because many hours every week we are injecting babies all over the UK. They are worth it , but the risk is there no matter what for us all to react to any immunisation.
You where trying to protect your daughter xxxxxx
Interesting as I read that vaccines can cause an abnormal auto-immune reaction in patients with strong immune systems and this seems to be the case with your daughter - the reaction, I mean, sadly. What helps one can damage another - this is why you cannot treat everyone the same and nor should everyone be expected to be treated the same as many health establishments seem to believe.
I started googling and found it quite alarming. I know live vaccines are not recommended with the immune suppressed but this is something we need to be aware of as health professionals.
Unfortunately medicine is so vast we cannot specialise in every aspect but since I do injections I'm surprised and will be looking in to it.
Also My symptoms started around the time HPV was started to be given in this country. I did not have one- far too young Or is that too old. But I gave loads and you empty the syringe of air. This means a small amount comes out. I often wonder if that can effect me. I know every flu season I end up ill if I do the flu day. It does make you wonder and worry
I think you are wise to be cautious. I am sure all the vaccines I had affected me badly and could be why I have so many problems now. I should have researched, but knowledge was limited then. I used to have a tetanus jab regularly due to being a keen gardener, but not now. I steer clear of anything that could set off my immune system problems including flu jabs.
I think the problem is that the establishments assume we are all the same and can all take it, but I read the books of Dr. D'Adamo and he said 'O' blood group have strong immune systems and don't do well on conventional treatment and vaccines. So much in his books made sense to me as if he could have been writing about me. I am also rhesus negative and that affects things, too, but most medical personnel know little of these facts.
Unfortunately care is aimed at the mass and not very individual. Time is being shortened and more people are pushed through the system. It's such a shame things are getting worse but at least we have an NHS at the minute. I'm sure they are running it down. It scares me as healthcare is so expensive and would we be able to get insurance. I got turned down on life insurance until the investigations where finished. Advised to try again then. They could of had 3 year of money by now and I've no intentions of leaving this life for years lolx
Yes, the NHS is good, but we still need to decide what is right for us and that is the difficult one. I follow my gut instinct.
An example, my husband was having a sigmoidoscopy in the week and he had to take picolax.
Having a sensitive gut, I worried it could affect him badly, but I had to let him make his choice.
I wouldn't have it, but that is me!
Anyway, he took the first lot and was on and off the toilet every few minutes for most of the time before the second dose was due.
He said to me - this would be no good for you - I said no, that is why I refused.
Anyway, I said 'Are you going to take the second dose?'
He said he would ring up and ask if it was necessary - he did and was told it was, even though he was only passing water by now.
I told him to not take it - he felt he shouldn't either and went for the sigmoidoscopy the next day.
The doctor said it was the cleanest colon clear-out she'd seen in a long time.
I asked if he told her he didn't take the second packet of picolax.
He said no.
I asked why not.
They will only learn that patients are all different if patients tell them.
With such a good clear out with one packet, taking the second could have been dangerous for him, I feel, as there was nothing left to clear out!
It's hard to decide what's right with ought the insight and its not always easy getting the info we need to feel informed
We have also discovered that my daughter is Rhesus negative whilst she was in hospital requiring a blood transfusion. Is this something to worry about as I've been focusing mainly on finding her a cure through alternative medicine - natural remedies? I've googled so much about this vaccine after she fell ill and its alarming how many young girls have been affected. How right is it to just vaccinate someone without asking all the right questions or doing necessary tests beforehand? Why isnt it clearly indicated on the leaflet that comes along with the vaccine, that there can be very serious, incurable diseases associated with this? So many questions with yet no answers
Thanks for the info! 
Yes, it does make you wonder what info isn't passed on. Immunising isn't a favourite role of mine and I do give the info I'm aware of. As for HPV vaccine most are done at school and I've not done one since the initial introduction stage so that may be why I was unaware. Unfortunately general practice is general we are not specialists. We rely on specialists updates. You definitely got me thinking though. Ill be asking my colleague who has recently done a course so she can do the childhood imms what was in the course and what they said about the info we give. The possible side effects can be so long
Very true you are so right! List of side effects could be endless, however, in my personal opinion it is one thing stating nausea, headache, vomiting, redness, etc.... are side effects to specifically indicating more serious long term illnesses. I was encouraged to give my daughter Benlysta to treat her Lupus, I was shocked when i read the side-effects and immediately dismissed it. I have always read the leaflets with every medication before proceeding and also made sure to have as much confirmation as possible from doctors about the particular drug/vaccine and this was highly promoted
I find it quite frightening. As I say I hate that aspect of my role. I'd rather do a smear! It's taken me 10 years to be calm. Goodness knows how many baby's have looked at me in tears with WHY? In their eyes.
GP's gave that job to Health Visitors ages ago. It was then handed to the practice nurse. I think that's a mistake, not just because I hate it but because I haven't a clue about the child. Where the health visitor is supposed to be involved. My job is too general. You could never read up on everything. One minute I'm doing asthma advise, then a smear, then travel advice and then immunisations.
Although these injections are generally given by school nurses and possibly more detailed consent information should be given.
Hi
I'm researching. My daughter is 12 this year.
I was wondering how long ago she was given the injections and do you know if it was Gardisil or Cervarix
Thanks a concerned mum
My daughter took Cervarix, though i've been told that its same thing as Gardasil but falls under different name. Gardasil is produced by Merck found in the US and Canada.
Cervarix was the initial brand. It only contains 2 strands of the HPV viruses and doesn't cover warts. They chose it as it was cheaper. They are now using Gardisil as this contains wart causing strain also.
I have found a report identifying a link to MND but its not evident if the disease was there before injection or after. They are doing further research. But this causes me more dilemma as my dad died due to that. Not sure how I feel about my child getting, with this fhx, having the injection yet. I was all for it before today !?!
Sorry hope I didnt create unnecessary confusion in your mind about giving the vaccine to your daughter However I would seriously look into very well before doing so, and also make sure she has a very healthy immune system etc... Sadly as you know, once we give it to them, its irreversible!!
Thank you for your info. It has made me think though. You take care of yourself and daughter x
thanks you too take care xx
My daughter had Gardasil, and suffered with numerous symptoms. I think I would avoid both now after seeing her suffer .
Can I ask for a curious question I'm 19 and remember having this done in secondary school and then developing my symptoms in 2012 how did you find this information cause I would hate to think this caused my lupus to kick start please can you give me a more insight on this as I would love to know if this is a trigger thank you
Well my daughter started having extreme mood swings and also acting very strangely and angry right after her 2nd dose. Following which within the same she began feeling v tired, weak and being out in the sun was causing her to have severe headaches and feel worse. Then all other symptoms persued. When she got up strange looking chilblains and her butterfly rash, I began my research and I noticed that she fit in with nearly most of everything that was listed under Lupus. Our GP kept saying it wasnt until 2 months she developed a high fever which lasted for days. It had to take 2 admittances to hospital for doctors to finally diagnosis 3 months after I had already suspected it myself. I have researched alot about the link with the vaccine and Lupus. I can send them to you should you wish to read more about this xx
Yes please send me the links please thanks so much xx
You're gonna be very busy going through all i've researched!! Good luck xx
Hello! I am hoping you see this as I am trying to research for my niece who is now 23 and who has been experiencing a lot of horrible symptoms and was diagnosed with Lupus. She did get the Gardasil shots as a teen and now has Lupus. She also has 2 children both of who have been diagnosed with Autism a boy and girl. It is so painful to see what she is going through. She is in so much pain and so sick all of the time. I just found out yesterday that her mother had her get the Gardasil shots. What is your best advice for us? Thank you so very much. I really hope you see this!
So sorry to read about your daughter. My 14 year old has been sick since mid february, she has been investigated straight away for lupus as she had the lupus rash almost immediately. Her consultant rheumatologist thing it is cfs or chronic pain syndrome as her blood tests are all negative. We want to believe him of course but I still have a doubt. Strangely a nurse friend told us yesterday she met a young girl who got ill after the hpv vaccine and we asked her daughter when she had it, it was last year she thinks but i will call the school to check. I am looking into natural treatment. A chinese friend's sister who has lupus has treated herself well with chinese herbs yet I would check with your daughter's gp or consultant and also find a good chinese doctor. I know she travelling from canada to london to see this doctor.
Very best wishes to you and your daughter.
Hi annemarouge, yes I am in total agreement with you with regards to natural remedies. My daughter has been under the care of an Ayurveda UK doctor since September last year and this coming September I'm taking her up to India for a 4 week treatment in an Ayruveda hospital. I strongly believe that natural remedies and the right foods play a vital part in the treatment. However I will definitely look into finding a good chinese doctor in my country or in the UK in the even that India will not be successful.
Hope they can give you a proper diagnosis without further delay and that your child is treated well, with the least pain/consequences possible!
Best wishes to you and your daughter too and keep strong! xx
Has the Ayervedic treatment helped at all ? I am looking into every possible treatment option for my daughter. We ve tried homeopathy but it has not helped. Her rheumatologist has advised to do a 2 weeks exclusion diet first wheat and then dairy as she had stomach pains last sept and in january which resulted in an appendectomy (not infected) and then just told it was a viral gland thing. I read about candida albican problem which can give the same symptoms as lupus, cfs etc...we give her best probiotics everyday, vitamin D and multivitamins (biocare) and they asked what supplement she was on as her vit D result in blood test were very good. Is your daughter managing to go to school ? Ours goes now 1h a day unless she goes to physio or doc appts.
Best wishes
I have read that symptoms due to lack of Vitamin D can mimick certain illnesses. Well my daughter takes 4 Magnesium tablets daily but still not much help So far with Ayurveda she has been on herbal medicines and a restricted diet to try clean her body from the bad toxins - it has helped her tremendously as the food she now eats does not give her more pain/inflammation etc. However mine's 17 years old, and whilst out with friends i know she sometimes tends to eat the wrong things - but she's learnt everything has a consequence. Eating gluten gives her inflammation and stomach pains. Acidic food also affects her in the same way! Sadly her diet is extremely restricted and its very hard for her, hence why she is very depressed. Mine still attends school but since she is in preparation for her A levels next year she only has 3 subjects to study. However I must say there are many days where she is locked in bed unable to go. Infact she had started off with a more intense course but had to drop most subjects much to her disappointment and regret. Thing is not sure if its a good thing or bad, but my daughter is a fighter and refuses to mope around in bed wasting her days. She attends school as much as possible, works part-time (only 12 hours a week) and meets her friends. As long as its all in moderation. She is no longer capable of wearing high heels, going to parties etc.. as that is too tedious for her. Mine has weekly sessions with a phsyiotherapist and psychologist and i massage her daily with special oils and place heat packs over the painful areas after the massage. I also make sure she takes hot baths frequently when in extreme pain.
Could you please advise me the names of the probiotics, vitamin D etc.. that your daughter is taking maybe i could try them for a while for her?
Thanks and take care
Hello, my daughter got the HPV shot and started developing systems that you are describing here! I stumbled across something on FB and started reading up on HPV more and started putting two and two together and think this is what triggered Lupus s in an otherwise, normal healthy teen. Can you please email me info you have found? I would greatly appreciate it.
Jazey1@gmail.com
Thanks
Hi - how is your daughter now?
The probiotics are from Dr Mercola and she takes 2 a day first thing in the morning, the multivitamins and vit D (liquid and high strength) are from Biocare and are available online from the natural dispensary. I got a discount from my homeopath so if you go and see an nat med practitionner ask them as a 25 % makes a difference, they are expensive but in my opinion extremely good. Our daughters have very similar symptoms, joint pains, fatigue, headaches from sun etc...i really don't want it to be Lupus but there is still a little doubt nagging me. My daughter's blood tests consistently were negative however it seems a small amount of lupus patients have no ANa, inflammation markers which is troubling...
Thanks for advising. Havent read much about candida albicans, however CFS. fibromyalgia and lupus all have really similary symptoms. What were all her symptoms like so far? Yes, I dont blame you and sympathize, hope and pray that it is not Lupus!!
Mood swings, anger, confusion, extreme tiredness, butterfly rashes, join pains, mouth ulcers, headaches, stomach aches (not many), breathlessness. All blood tests are negative. All re-assuring yet she is very poorly...mind boogles. We are seeing her consultant on 3rd of June for a follow up so will ask for definite diagnostic however I know realistically we might never get to the bottom of this. They think it is CFS (originally they thought chronic pain syndrome which they specialise in this unit, didn't even know existed). I am encouraged by your experience with natural medecine thought and it is really good to read about your daughter's progress. I will read all the info you sent about HPv. We are getting the HPV dates from our school nurse later on today. Scary stuff...
not sure if CFS sufferers normally get mouth ulcers but my daughter with her lupus definitely does and she is constantly in agony. They even spread to her outer lips when she sleeps and drools However, I have discovered soluble prednisolone called Solupred which works wonders with her ulcers - some relief here at least. Otherwise, sorry to tell you but my daughter has all of the above you mentioned and has even been hospitalized twice this year due to severe chest pains, common with her condition. Wish you luck about the HPV dates, hope thy don't coincide as really I've had sleepless nights since day she started getting all these symptoms and all i do is research day and night. Good luck!! xx
She gets swollen lips, she has had painless ulcers, her dermatologist was more concerned with the rashes which were so lupus specific. Her gums bleed at the moment but it might be because she hasn't looking after her teeth and gums so she is going to the dental hygienist next week for a check-up. My husband was very keen to get a second opinion, it makes me cross that such highly trained specialist could have such different opinion on the negative blood tests, why can't there be one medical position...Her consultant said even if she had Lupus he would recommend the same treatment, no steroid as there is no inflamation, lots of physio, paced return to a normal activitity with a focus on a strict sleep, meals etc...routine. They are very successful in curing severe cases of chronic pain syndrome so I guess we are lucky to have such a hospital unit close to us. I just want to make sure they diagnose the right thing as without treatment Lupus can have dire consequence. My daughter's best friends mum was misdiagnosed years ago and almost died as a result. She has a very successful career/life with the help of her medications. I too spent days and nights reading everything I could, some of it fidn't help and managed to terrify me. However I think there is do much we still don't understand particularly about such complex conditions that it is healthy to explore complementary treatments which will not have such adverse ill effect on the body. A word of warning on chinese medicine please research and make sure the practitionner is a respected one as I have read a few worrying stories about bogus ones. I will try to find out who was my friends sister practice, all i know is they were london based. Where about are you based ? Does your daughter have a good rheumatologist ?You said your daughter had severe chest pains, was it pleurisy pains (stabbing sharp pains or was is a shortness of breath, tighness and what the docs think is her breast joints hurting). Sorry to ask you so many questions but the last 3 and half months have been a nighmare and we go from feeling reassured and optimistic that they will get her better to feeling in dispair when she feels really ill again ! It all feels so unfair when they should be enjoying lifs to the full. Are you getting anything back from the drug co responsable for making the vaccine.
not to dishearten you but my daughter's bleeding gums was a worrying factor just 6 months after the first dose of the vaccine and at the time the dentist didnt think twice about it except that she needed some vitamins. It was only after being diagnoses and recurrent ulcers that a specialized dentist confirmed bleeding gums was all related. Infact she uses a particular toothpaste which she founds soothes her gums and teeth the most. Her chest pains were shortness of breath, tightness and as though someone was pushing down on her. They advised that all this pain was all due to GERD (Reflux acid disease) caused by her condition. I totally sympathize with you for going through this nightmare - i lived it for months and kept insisting with the doctors that she had lupus after researching all her symptoms, butterfly rash etc.. but they only confirmed her diagnosis after 3 months and 2 hospital admittances, where she was diagnosed with every other possible viral infection, but never Lupus!! I was angry and mad at them for a long time, oooh yes and at myself too for giving her this vaccine but this is what life has dealt her with and all i can do is try to find the best alternative treatment for her. I live in Malta - an island off Sicly so nowhere in the UK My sister lives in London and I visit her often and she is the one backing me up and helping me find doctors in the Uk etc... Infact last year we visited 3 Ayruveda practitioners in the UK and we decided to opt for the Ayurveda doctor who is very highly experienced.
Well I did ask a lawyer to look into this of the vaccine, but as he's advised me - the foundations for a case are there, however I need to prove medically that the vaccine actually triggered off her Lupus which is extremely difficult to do
I just dont wish other teenagers to suffer my daughter;s same fate
xx
The chest pains sound very similar, the gp's say her chest is fine as her xray came back fine and her chest sound clear however I know there is dmtg wrong and she said it feels like someone pressing on her. I will talk to her consultant at next appt. on the bleeding gums I didn't know that was linked with Lupus...
But if the dental hygienist says her gums are ok next week i will add this to the list of lupus related symptoms and quizz her doc at nxt appt. She hasn't had mouth ulcers (never sore ones just flat ones) for a while and no butterfly rash for 3 weeks now and her dermatologist thought it was a good sign but wants to do a skin biopsy if she gets a strong rash again. As the weather has not been very good she hasn't been in strong sun for a while, I guess a skin biopsy would show lupus...
Not surprised that whith the stress and worry you've been under taking in all the implications of your daughter's condition taking legal action would be difficult and a brand new battle.
I was completely unaware of the possible HPV side effects which makes me angry. As I said earlier the 2 doses she had were last year and i haven't got the dates yet and the first ill health she had was in Sept 2013.
I chose to give my daughter separate MMR injection as there was so much in the news about the link with autism. I guess the big drug companies would say it could be coincidental...
I will look into the ayurvedic medecines too. If we definetely find out it is not Lupus (that seems to be the current diagnostic) and CFS I will also look into an homeopath who practices a specific type (deep cell homeopathy) which is popular in France and Germany. It worked wonders on a friends daughter who had severe CFS and got better than cured after her treatment.
As a parent it is so important to look into every possible way to help our precious kids, it takes over your life !
I wish you and your daughter all the very best and thank you for spending time answering all my questions. It helps to chat to people who have been through it and are finding solutions to get them back to health !
WEll actually I was discussing with my daughter about her ulcers and she told me that they are painful when she eats only. However the ones she gets up on the exterior and the corner of her lips are painful as every time she laughs or talks they tear open taking lonver to heal. I have been buying Himalaya natural products and toothpaste for her and she finds them very good and helpful.
Wish you all the luck in the world to have the right answers and most especially the correct diagnosis. Us parents never rest -I think i drove her rheumatologist insane questioning him constantly
Take care, anything you need please feel free to ask
xx
Thank you very much, I will let you know how we get on. I wish your daughter all the good things a 17 years old agoukd have. If I could. Turn back the clocks..
I took our good heath for granted, never expected this to happen, all I can do now is to support and look for the best way to a recovery.
Take care
Hi there,
I am curious about this, I have never made the connection about the vaccine and lupus however my daughter was unwell after each vaccine and within 18 months of vaccines was diagnosed. I now wonder if it contributed or triggered something that may have already been there. Feeling puzzled, may email her consultant to gain his thoughts.
Good luck.
Hi Hmmm all this makes me think that I have not been imagining things and the vaccine is the actual trigger of certain illnesses. I have attached some links further above in case you;re interested in reading more, however, at least in my country, the consultants have been thinking I'm mad. Only 1 or 2 doctors are agreeing with my thoughts and are supporting me - though there's nothing to do now, we cant turn back the clock and surely my daughter's help is not going back to be what it was a year and a half ago But i wont rest or give up until i have answers and find her the right treatment possibly cure!! Hope all goes well and your daughter wont suffer too much.
Take care and good luck to you and your daughter xx
Dear robpeca
My daughter has suffered similar symptoms to Lupus after the HPV injections in 2010 , after the 2nd one she had flu like symptoms, a sore throat with cough that has never cleared up, unbelievable fatigue, and a number of other symptoms. She has visited the GP numerous times, missed a great deal of school, she is an A* student and could hardly sit her GCSE exams, her A-levels were a struggle with lots of time off. She went to university for a week and had to stop due to worsening symptoms.
I suggested to the GP that she may have Lupus and was told NO, and that it is just teenage stress! Blood tests have shown that she had low iron levels and low B12, after a couple of years of low test results I insisted on B12 injections which has helped her energy levels and she has just started to have a life, she has managed to secure an apprenticeship in which she works 6 hours a day, so suits her at present.
I did report my thoughts about the HPV vaccine via the Yellow Card system, anyone can do this, I would suggest that you do this, the more cases that are reported the better. The medical profession are certain that the injections are not the cause, but there are a number of weird cases. I believe some girls are ill and do not realise why, doctors put it down to exam stress, hormones, etc. and that is where it is left, so goes unreported in respect of the HPV vaccine having a cause of the syptoms. I was a teacher until recently and have seen some girls wilt before my eyes! I am as you are sure that these injections have had their part to play in their symptoms.
I have Connective Tissue Disorder (CTD), Lupus, Sjorgrens Syndrome, underactive thyroid, and I believe this was triggered 7 years ago from an influenza vaccine, but again nobody will accept my view, I was also healthy, slim and full of life, the condition has forced me to give up my career, Lupus symptoms have certainly had their impact on my life and my family.
I hope the HPV vaccine is able to finally run low in our daughters bodies over the next few years; they were talking about doing booster injections every ten years as the medical profession were unsure of the protection after this amount of time, there is no way my daughter will have that!
I hope your daughter gets well soon, she will have brighter days, she must rest when she needs to, if she is still at school get her extra time for her exams and also some rest time if you can. She has a condition that should come under special needs and working adaptions are needed to accommodate her.
Hi iloveshopping
Wow - am once again so shocked and furious after reading about your daughter! It angers me so much that so many of our girls have gotten sick after taking these vaccines and whoever I have been talking to in my country has thought I was going mad coming up with such an assumption. I know i'm not and i'm more convinced than ever about this. Can't believe they would want to give booster after 10years thats insane and they are refusing to listen to all those parents out there like me who have reported this.
Never heard about these B12 injections - would something like this possibly help for Lupus would you think?
My daughter though she's in constant pain due to her Fibromyalgia too now, believe it or not, still has a 'social' life well not much but better than nothing at all. She even studied and passed her GCSE;s last year whilst in hospital. She's lucky that she has so much determination in her to fight this off and I can see that many times she pushes herself to the max not to give up, no matter how much I argue with her to rest
Poor you, having to deal with your own and your daughter too! It must be very hard for you and I sympathize with you. Wishing you good health and positive energy to at least deal with your family as best possible. I'm sure its a daily struggle, as I can say for myself, my life has become a turmoil and I am always drained out. My daughter is on a special diet as we're trying to remove the bad toxins from her body caused by her illness and its a constant headache for me what to cook for her since she's extremely limited on what she can eat. And her occasional tantrums, outbursts and depressive moods leave me feeling helpless. But I havent given up yet, doubt I ever will
I just wish and pray they get this vaccine off the market before more and more girls lives will be ruined.
Will keep you in thoughts and prayers, wishing you all the very best
xx
Thank you for your kind words.
I was pleased to read that your daughter managed to do well in her GCSE's despite being ill. It is good she fights on, my doctor always told me if giving in hasn't helped then the next option is to fight it, I have tried both methods, both are draining, so the later is probably the best option, at least we are able to have some form of a normal existence.
Perhaps the truth will come out one day about the girls who have suffered from the HPV vaccine just as it did with the dreadful affects of Thalidomide and birth defects in the late 1950's early 1960's. In the grand scheme of things the numbers who have had side affects is low, and as you have probably researched, medical opinion is that many would have developed CFS type symptoms anyway, it is infuriating.The start of the symptoms are not a coincidence .
My daughter lived in her dressing gown for about 3 years! she could not go out, she would suffer more enhanced symptoms if she did, it was very distressing. Her symptoms were very much like Lupus and like my own. Doctors ignore most of what we were telling them, she definitely changed after having the HPV injections, blood tests showed low Iron,low folate and low B12, we were not told this for about 18 months, it was only when I asked what the numbers were they had to tell us. I asked for the B12 injections as we had tried it orally, the body does not always hold onto it from food or supplements, the B12 injections have made a huge difference to her, they are given to her every 3 months, she can see she needs it after about 2 months, she still has lupus type symptoms but not so severe, her life has started to turn around, I love seeing her go out!
A B12 blood test is very simple, it is not always thought of, but it may be worth giving it a try, I think the range for the results should be between an optimal 300 -600, anything less than this would probably warrant treatment.
Good luck.
Robpeco
Hi, did you know they are going to reduce the HPV injection dose to two doses soon. They are saying the reaction is sufficient if given at 12-13 for only 2 vaccines to be required and this gives a 20 year protection. The same update briefly mentioned the jabs causing CFS but that they where sure it was not the cause (no mention of lupus ). They felt it was a coincidence as this is the age that the incidence of CFS increases and a lot of research had been done to prove the vaccines where safe or they wouldn't be used. Good luck with your research x
Good morning Whatppned!!!
Unbelievable havent heard of this yet. In my personal opinion, they are trying to get out this by saying the vaccine is not the cause of all these young girls falling ill - can it possibly be such a coincedence??? No way , I dont believe it and I so wish I can have the medical support of her doctors to take my case further. But so far havent given up! Thank you need all the luck in the world xx
Hi
I have always been supportive of immunisation programmes and even paid for Gardasil as they were given Cervirax to girls when the schools were carrying out the immunisation schedules and knew Gardasil would cover more strains. I now feel dreadful for putting my daughter through this, she had side affects like flu, lifeless, headaches,etc straight after the vaccine, we just thought she pick something up, we had to prospone her second injection until her health started to picked up, we were told the vaccine was safe and would not have caused this, on reflection it had to be the vaccine. After the final vaccine we have seen her health deteriorate, I hope it depletes over time out of her system. Never again.
Also many parents and girls do not report the symptoms to their GP's, many think it is just viral, non specific symptoms, so do not think it worth bothering the GP. There needs to be surveys carried out on girls who have just had the injections and not left to infrequent visits to the GP.
All very difficult to prove.
Regards
Hello,
Yes, I was recently diagnosed with Lupus after the Gardasil vaccination. I was healthy with nothing wrong before that vaccination. Right afterwards, I was in and out of doctor offices and I now have full blown Lupus.I know it's from the vaccination even though no doctor will agree with me. I didn't even want the vaccination. It was pushed and pushed by my gyno until I agreed to take it. I feel this is not fair at all and Lupus has completely changed my life. I feel like it's been taken away from me.
If you like, you can email me @ nwoodard19@gmail.com
I am 26 years old and was recently given the hpv vaccine. Soon after that I was diagnosed with lupus. I firmly believe that it could be as a result of the vaccine but when I discussed it with the doctors they say that they don't think so. I am in so much pain right now. Everywhere is swollen and paining.
I'm so sorry
Hi my daughter has also been diagnosed with lupus no DNA v healthy up to jab
For anyone who believes their daughter's illness was triggered by the HPV vaccination, please get in touch. I'm part of the Association of HPV Vaccine Injured Daughters (AHVID) which gives support to families in the UK who have daughters with new health conditions following HPV vaccination. My contact details are as follows:
Caron Ryalls (Ossett, West Yorkshire)
Email: caronryalls2025@gmail.com
Tel: 07885 422690
Facebook: facebook.com/caronryalls
We also have a Facebook group open to families across the world to share experience, information and support. The Facebook group is: Parents of Daughters suffering long term side effects after HPV vaccination
facebook.com/groups/Parents...
Please also note that the European Medicinces Agency have recently launched a Safety Review of the HPV vaccines in relation to two specific conditions: Postural Orthostatic Tachycardia Syndrome (POTS) and Complex Regional Pain Syndrome (CRPS)
ema.europa.eu/ema/index.jsp...
Autonomic problems, such as POTS and CRPS, are not uncommon with autoimmune conditions such as Lupus. If you have developed POTS or CRPS in relation to your Lupus, following HPV vaccination, can you please get in touch with me, as we are collating information and statistics to present to the EMA.
Thank you x
I wish they had you in the usa
I just found this site after my sister told me her son's girlfriend developed lupus after the HPV vaccine, and out of curiosity I googled it. I knew she had lupus but just found out today that they suspect it was from the vaccine. I remember, it was bad, she was having hallucinations and just was not herself. To think it was caused by that vaccine makes me so angry!!
Please don't blame yourselves, I know you were trying to just do the best for your kids. My aunt forced her kids to get the vaccines too. Those vaccine companies should be absolutely ashamed of themselves. I hope all you Moms will get together and file some class action lawsuits. At the very least, I am hopeful that all of these instances will be reported to lawyers to at least put some more pressure on the pharmaceutical industry, and the public may become more aware that the HPV vaccine is DANGEROUS. You can't change the past, but you can use your experience and turn it into something good by warning others!
therefusers.com/us-vaccine-...
schmidtlaw.com/gardasil-law...
schmidtandclark.com/gardasi...
If you want to see some really eye-opening facts about the pharmaceutical industry, look at the videos on this page... you will be shocked. At the 5:40 mark in the first video on this page, a woman says that when her daughter went to medical school, she was taught that 50 percent of hospital admissions are due to iatrogenic diseases... meaning, diseases caused by doctors.
healing-liver-cirrhosis.blo...
I'm praying for you that all of your daughters will be able to recover from this!
Ellie
My best friend contracted Lupus after her second vaccine. She had experienced body aches all over. Later while waiting for third jab, she experienced eye swelling. She thought it was just some eye infection and went to consult normal family doctor. The medicine didn't seem to work, and was told to have a blood test. It was then she was confirmed to have this disease..she also admitted it was too coincidental that she have to doubt about this vaccine.
I am writing in hoping to find some answers and prove that this is not a lone case, and we need to get it known to the scientists and doctors! This is no joke! This concerns a person's whole life!
Yes my daughter is now 22 she was diagnosed with lupus at 14. Until I seen this thread I never even consider a vaccine to have been the cause but after reading everyone's post I'm thinking it is very possible, her symptoms started shortly after finishing all three rounds. This is definitely something I need to bring up to her Dr.
I got the last 2 gardasil vaccines in Early 2011 last one in june. In november/december 2011 I had developed exfoliative cheilitis. I also noticed over the next few months I had health issues for the first time in my entire life - irritable bowel syndrome, cracking joints like elbows, knees, foot joints, pinky finger joints, & my fingers & toes were constantly freezing. Now in 2018 I started having joint pain in my finger, elbows, wrists, & bottom of feet that has interfered with my work. My blood work came back positive for lupus. Lupus does not run in my family which is large. I am 100% convinced that if i didnt get the gardasil vaccine I would never have lupus now in 2018. All of my health problems started quite soon after those gardasil shots & all of my health problems match other young womens studies. I also match the criteria for A.S.I.A because around 1 year after the last 2 shots i developed irritable bowel sy drome. i am going to try to sue because this vaccine has irreversibly ruined my life & potential future. My quality of life now at 24 is ruined forever & ill likely seek out assisted suicide within the next 20 years. I want gardasil/merck to be charged for my torture & whatever is tantamount to my murder because thats what has occurred. I went from 100% healthy to more joint pain & fatigue than many 70 year olds. I am already nearly too disabled to work due to the joint pain. I want to raise awareness about A.S.I.A & these vaccines that can cause such terrible health problems you wish the vaccine had just killed you so someone wouldve been more held responsible.
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