Anyone suffered from a seizure due to lupus? How did you cope after?

[Clairebear]

[Lulabelle]

Yes once thankfully that was when I was very very ill with Lupus and I think it was a concoction of high levels of med's, stress of lupus on my organs etc. They send me for a brain scan ( I was thankful to know there was one there lol!) and they advised that there was no scarring on the brain etc and it was just a result of the body overloading.

Lulabelle x

[Clairebear in reply to Lulabelle]

Thanks for your reply lulabelle. I've had scans too but had a seizure and it's just really knocked my confidence. Don't really feel that " ill" at the mo.

[krisdy]

I have had Systemic lupus for over 4 years now. I had my first seizure about 6 months ago, everything is ok right now. I say righ now because in 5 min. something might change, not that I worry its just if I plan anything or say I am having a good day It will back fire on me everytime. Dont let it knock your confidence!!! really we might never have another one!!! but it knock my confidence too. and then I thought forget this, because if your confidence starts going down so do you and then everything gets worse!! So you hang in there!!! I will pray for you too!! we are all in this together!! It is a very lonely life with lupus unless u have it. No one understands!!! stay strong, Love, krisdy

[Clairebear in reply to krisdy]

Thanks for your reply Krisdy. Nice to know that I'm not alone and things can change. Am trying to pick myself up and have got a few close friends who are supportive but you're right that you don't really understand lupus unless you have it. I hope you keep strong and thanks for message x

[heatherx]

I've had quite a few mini strokes (tia's) sometimes I know I'm having them sometimes I only know when they show up on my brain mri's. I don't really worry about them, I know life is unpredictable and never know how I'll be one day to the next. I cope by not even thinking about the future, I'm happy and things could be a lot worst so I've a lot to be grateful for. Good luck and try not to dwell on what tomorrow 'might' hold x x

[Clairebear in reply to heatherx]

Thanks for the reply and your kind words. I'm trying to pick myself up and trying not to think to much about what happened cause I find myself having a panic attack. Got to keep plodding on xx

[heatherx]

That's ok try stay calm as stressing just flares you up! Just think of the things u can still do rather than what u can't! You can still have a life it might just not be the one you were hoping for. I still put my make up on and if I'm not up to being dressed have pretty jim jams for the day, as you know if you make that little bit of effort you'll still feel like crap but feel that bit better for knowing you can still look nice! I've wobbly legs and still off on a school reunion tomorrow night! I just have pink crutches and decorated them with diamontes! Take care of yourself and message anytime if your feeling a bit down and want a bit of support x x

[Clairebear in reply to heatherx]

Hope you have a fab time at your reunion. I suppose I am quite lucky as I still hold a full time job although it can be hard sometimes. So I do feel a bit of a hypocrite putting my problems on here telling you that I'm struggling.

[heatherx]

Not at all that's what this forum is for! You know what they say a problem shared is a problem halved! I to worked full time until a year ago but I'm to unpredictable each day now to hold a job down. As for my reunion it went fab! Little (or not so little ;-)) ) black dress, 4" heels and pink crutches that's been blinged up! Lol spray tan, hair curled all for saturday night! ... Sunday morning head unable to be lifted from pillow, throat that felt like I'd eated sandpaper and a voice that sounded like I'd had a sex change through the night! I blame it on the lupus not the umpteen vodkas! Haha! Hope you've had a good weekend x x

[Clairebear in reply to heatherx]

So glad you had a fab time at your party. My weekend was crap. Had to cancel a night out due to panic attacks. I've been to my gp and she has been really good. She has given me something to help with the panic attacks and a few weeks off work. The witches of east wick ( my management ) weren't to happy about that. I've got the lupus clinic tomoz( Wednesday ) so hopefully can get some answers and understanding on what's happening cause was feeling ok until last weekend. Hope the hangover didn't last too long. Take care xx