Just wanted to say that I went to the Lupus Clinic today and came away feeling really cared for and supported. So often we tend to report difficulties and forget the positives. I was pretty sure I was flaring and explained my symptoms and was really listened to and felt I was being understood. Treatment has been prescribed just on talking through things and a physical exam (back on steroids for a while!). And lots of bloods taken to check and follow through.
So although I am upset to be flaring (and feeling very rough to be honest) and a bit sad at having to start steroids again (came off them over a year ago) I know it is for the best because it was discussed properly and I was given all the information I needed.
So big gratitude to my lupus team who help me feel secure and looked after. That means loads. And all on the NHS At a hospital on my doorstep. Lucky me .