How bad is it that we just dont know how we will feel when we wake up each day??

Im finding it increasingly tough not knowing how going to feel the next day. Actually sometimes how i feel changes hour by hour

[maggied54]

i planned to go with my daughter today but when i got out of bed i felt as if i had run a marathon day ruined.

[maggied54]

i planned to go out with my daughter today but when i got out of bed i felt as if i had run a marathon.

[Hidden in reply to maggied54]

Bless you. I know exactly how you feel I hope you feel better tomorrow x

[maggied54]

sorry about repeating myself

[jamg3916]

It's one of the really tough parts of Lupus. I have no magic answer but find 'pacing' myself has been the most successful. And that is so individual, since I stopped getting very worked up about not being able to do things it has become slightly easier. But I still have days when I have to forget everything and just rest, the biggest trigger is stress for me.

[Callingjen27]

I hate that and face it everyday.i just want to take my daughter to the park.

[Bebe76]

Completely agree. I hate not being able to plan ahead and having to cancel plans last minute. Adds to stress and really prevents me from having a social life!

[misty14]

Hi Singlemumloopy

I find this aspect one of the hardest to deal with and like you my health can change within hours! It has cost me a social life especially going out at night and holidays - I don't It helps to have understanding family and friends. I guess it's something else that we have to cope with but it's hard! Hugs X