OK, you may recall I asked for advice on blood in urine 3 weeks ago? I am just starting my 3rd week long course of antibiotics and today was informed of a date for a cystoscopy to see what the cause of the problem is. GP is wanting to know because of the care that needs to be taken of our kidneys with SLE. I am now quite nervous of this procedure and unsure if the results will tell us what we need to know? I am also having a kidney CT scan in the morning.
I am glad that finally I am getting necessary investigations done but furustrated that other than warfarin for my APS and a host of other drugs and supplements for anaemia, hypoghyroid, low calcium etc etc I am getting no treatment for SLE despite GP finally accepting that I have SLE.
I also have my first follow up appointment at St Thomas this week so am hoping I will have at least the results from my scan available for him so he can hopefully start me on some treatment.
Honestly, next week is going to be a busy one with four seperate hospital appointments. I'm already exhausted!!