Since being (finally) diagnosed last January - I'm slowly deteriorating. No major organ damage but the fatigue, aches and pains, I get numbness/tingling, balance problems and my memory is just awful! This all flares up and calms down - but my quality of life has changed drastically - in ONE year ! No -one really understands how I have to manage this somehow every single day - it's a constant challenge. I can't do half as much as I used to do with my lil boy (age 10) who luckily is at an age where he can at least get on with things now. I still work full-time because I have a mortgage to pay. I can't afford to stop. Feel very lonely and read lots of posts where people have lovely husbands looking after them - and I am very happy for them, don't get me wrong, they are blessed - but I don't have anyone to look after me. Feeling sad and worried
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