Hi, I am rather bothered about some strange symptoms I have been getting. I realise my health conditions make the situation more than a little complicated than most - I am hypothyroid (100 mcg levothyroxine approx12 years), coeliac (total GF diet 11 years) and significant painful migrating joint pain symptoms / dry eyes / dry mouth with a sjogren's / UCTD diagnosis for which I take plaquenil (200mcg daily). My lupus panel came back negative.
For a few months now, I have been concerned about the feeling of being pricked randomly all over like someone has stuck a pin in me. I get runs of this and when then happen they interrupt my day as I am driven crazy all day unrelentingly with feeling as though someone has stuck a needle in me ... it is a real OUCH! Sometimes I they are in my eyeball. I have even been woken up having been fast asleep. Also, sometimes I get the feeling like an electric shock going up my leg and I cant weight bear (but lots of my joints are bad). Sometimes this has woken me in the night too and my legs often feel disconnected if that makes sense?
Through the Thyroid UK site, I read that this might be attributed to vitamin B12 deficiency - my GP tested me and my results were 284 (lab ref 224 -1100) so pretty low considering I had been taking a multi vit with vitamin B12 included. The GP agreed to my taking a sublingual spray for 3 months... but the symptoms have continued to rear up again. When I went back last week she said she didn't think it was a vitamin B12 problem.
She wants me to tell my rheumy next month but I have so many joint pains... will he be interested in these symptoms? My GP says if he thinks it is not related to UCTD etc... then she wants to follow this up.
Would anyone else be concerned? It is all beginning to interfere with my life .. I cannot separate out which problem is part of which condition.
Thanks in advance.