Hi just thought I would explain on here something strange that happened to me a few weeks ago to see if any other lupus sufferers have had this or similar.Sorry this may be a long post.
I had my usual 6 monthly treatment of Rituximab and Cyclophosamide infusions,usually the day after the Cyclophosamide i am very sleepy and sleep most of the day and feel really sick for about a week.I take anti sickness tablets for this.Well this time I woke the next day feeling sick but not tired,this was a Thursday.
Went and did a bit of shopping e.t.c with partner,by the afternoon I felt very tired so went to bed.
From the Thursday right through to the Sunday morning I basically did nothing but sleep,I just couldn't seem to stay awake was only awake for a total of maybe three hours during this time.
Sunday morning woke up feeling not too bad,got up dressed had breakfast and so on.Decided to go shopping to get our son some things,around 10:00 when we left I noticed my tongue felt strange like it was too big for my mouth,like the feeling you get at the dentist when they numb your mouth.I mentioned this to my partner but didn't think too much about it.Whilst out shopping we noticed my speech had gone a bit funny,me and my partner were actually laughing and joking about it not realising what was about to happen.
We decided to go home as I started to feel not right,whilst my partner was driving my speech started going more and more funny so he said he would ring McMillan nurses when we got home and see what they say about it.
For some reason I looked in the cosmetic mirror in car to see the left side of my mouth droop and I looked just like the person you see in the advert about strokes.Well as you can imagine we both panicked a little,my partner turned around and quickly got me to my local hospital which luckily was only about ten minutes away.When we got there a stroke nurse got me to do lots of different things pushing with legs e.t.c.By this point mouth was moving all over the place and I had no control of it at all.
About half hour after it all started everything went back to normal.This happened about five times in total over a period of a few hours each time lasting less time.
I had ct scan which was all clear.I stayed in over night and got let home in the morning.I went back a week later to see stroke nurse and consultant who said it wasn't a stroke but didn't know what it was.I had MRI scan which was also all clear.
I now have a neurology appointment 10th June,not sure what will happen there but hopefully get some answers about what it was.
Has anybody else had this happen to them before,it was very scary but not just for me but my partner and eight year old son as well.I keep worrying if it will happen again as we'll.