Hi folks, just got home from a short stay in hospital for what I think is a lupus flare. The doctors wanted to know some information about my disease progression and arrange for an urgent appointment with my consultant. Sadly I live out of area which means that I am always sent to a different NHS Trust to my consultants. On 3 occasions in the last year, I have found it impossible to contact my consultant at these crunch times as indeed did the doctors in the MAU ward yesterday. Is this normal, am I asking too much? His secretary called this morning to say he didn't think it was necessary for me to see him until my scheduled appointment at the end of may and to just to continue on the high dose of steroids I have been given to supplement my methotrexate, despite his instruction 2years ago that I should only ever have a steroid by injection. I know that I am overly emotional due to the steroids and also the shock of having to go to hospital but I have been concerned about this or some time.
I would appreciate any advice as it always helps.