Posts - Lupus Foundation of Florida | HealthUnlocked

Lupus Foundation of Florida

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Anyone with Lupus experience upper back pain, scapula pain, and upper arm pain?

I was diagnosed with lupus 7 years ago. I have never had such bad pain in my upper arms, upper back between and above shoulder blades and in scapulas and...

I was diagnosed with lupus 7 years ago. I have never had such bad pain in my up...

Lorelle09

•3 years ago

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Just Diagnosed

I’m overwhelmed because I’m 78 and just diagnosed

judigirl

•4 years ago

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Lupus?

I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel...

I’ve have had high platelets for the past 20 years and have been living with pr...

Anniemari

•4 years ago

1 Reply

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My partner the vaccine and lupus

Hi all my partner has just received her vaccine letter and is very anxious about the whole thing she has discoid lupus with APS ( anti phospholipid syndrome)...

Hi all my partner has just received her vaccine letter and is very anxious about...

Hidden

•4 years ago

1 Reply

Malar Rash?

Hello! I’m new to this and am trying to figure out whether the myriad of symptoms I am experiencing are part of a bigger issue than the little individual...

Hello! I’m new to this and am trying to figure out whether the myriad of symptom...

aeasterl

•4 years ago

1 Reply

irregular heartbeat

Hello, I am on 200 mg. Plaquenil in the a.m. I also take 81 mg. Aspirin in the a.m. At night I take 30 mg. Temazepam as I have severe issues. I have been...

Hello, I am on 200 mg. Plaquenil in the a.m. I also take 81 mg. Aspirin in the ...

Jackiecnunez

•5 years ago

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Hiding my lupus.

It’s that time of year where the weather is beautiful and everything is about being outside in the sun! Well I can’t because of my lupus, and I’m finding...

It’s that time of year where the weather is beautiful and everything is about be...

Preciousj

•6 years ago

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Trouble

Having a hard type getting adequate health help with lupus since I denied a prescription is there a dedicated office or clinical facilities

Having a hard type getting adequate health help with lupus since I denied a pres...

asnyHL

•6 years ago

1 Reply

Benlysta anyone?

Recently started on these injections. Any thoughts? 💭 It seems to have helped a wee bit to raise my WBC’s but I still feel like death most days. Also I get a...

Recently started on these injections. Any thoughts? 💭 It seems to have helped a...

suzzze

•6 years ago

3 Replies

Research Opportunity!

If you have a spare 10 minutes PLEASE PLEASE PLEASE would you consider taking part in my research for University? I'm researching the effects of...

If you have a spare 10 minutes PLEASE PLEASE PLEASE would you consider taking pa...

Hidden

•6 years ago

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Feeling lost - Breach of Data Protection, Breach of Patient Confidentiality what does this really mean? Does it really mean anything anymore

Received telephone call from hospital saying they have given my personal details and discharge notes to another patient! Patient promises to return it and...

Received telephone call from hospital saying they have given my personal details...

denden

•7 years ago

1 Reply

Shaking not getting better?

Hi all , I got that nasty virus that is bringing everyone down and it moved into my chest and was causing problems there as well, I also had a sinus infection...

Hi all , I got that nasty virus that is bringing everyone down and it moved into...

Aralyn

•7 years ago

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Can it be?

Diagnosed with lupus. Positive ANA and positive dsDNA. Fatigue, mild facial rash and pain in my joints, mainly knees. Can I be misdiagnosed with those test...

Diagnosed with lupus. Positive ANA and positive dsDNA. Fatigue, mild facial ra...

Hidden

•7 years ago

1 Reply

Is it really Lupus

Blood work came back stating positive ANA and positive dsDNA. Slight rash on my face, fatigue and joint pain especially my knees. Can it be a misdiagnosis?

Blood work came back stating positive ANA and positive dsDNA. Slight rash on my...

Hidden

•7 years ago

1 Reply

curious

Is the sun also a major factor of lupus?

chimaobi10

•7 years ago

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Not Sure How to Title This

I am not sure how to title this posting because the post is the explanation. I have SLE and celiac. I accidentally ate gluten the other day, and now my body...

I am not sure how to title this posting because the post is the explanation. I h...

Boxxietrolls

•8 years ago

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Retinal holes !!

Retinal tears (holes ) bilaterally could be due to : Hydroxychloroquine, dehydration or malnutrition ?

Retinal tears (holes ) bilaterally could be due to : Hydroxychloroquine, dehydra...

Samaka

•8 years ago

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Green Juice

Hello Lupies, I haven't been in Healthunlock.com for maybe more than a year. In the last 3 months, I started my new diet and it seems to work for me, not only...

Hello Lupies, I haven't been in Healthunlock.com for maybe more than a year. In ...

kimc

•8 years ago

1 Reply

Hi, only me!

I have lupus, and unless you can see I'm in pain I look fairly normal so people don't believe I'm suffering. If only they knew!

I have lupus, and unless you can see I'm in pain I look fairly normal so people ...

Dr-Koopa

•8 years ago

3 Replies

Hydroxychloroquine and retinal problems !!

Hello , i'm talking plaquenil (hydroxychloroquine) 200 twice daily since august 2015 and now my ophthalmologist saw some changes in my retina (abnormal...

Hello , i'm talking plaquenil (hydroxychloroquine) 200 twice daily since august...

Samaka

•8 years ago

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Lower back and side pain

I have had lipid for about 10 yrs and have recently developed pain in my side about waist high. It both hurts and itches but there's no rash or lumps it hurts...

I have had lipid for about 10 yrs and have recently developed pain in my side ab...

Loloc

•8 years ago

1 Reply

Lighting

I have heard a lot of talk about LED lights and how they are allegedly better for those with photosensitive symptoms. What's the word? :-)

I have heard a lot of talk about LED lights and how they are allegedly better fo...

SouthernButterfly

•8 years ago

1 Reply

The dangers of contracting hepatitis b while having lupus what is the ddanger

I am trying to find out how dangerous is it to contract hepititisb while having lupus

I am trying to find out how dangerous is it to contract hepititisb while having ...

Bobbyrivard

•8 years ago

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doctor recommendation

hello I've been diagnosed with lupus 3 months ago, but the diagnose isn't so clear I want to give it a try going to another doctor in the USA, because I'am...

hello I've been diagnosed with lupus 3 months ago, but the diagnose isn't so cle...

ana24r

•9 years ago

1 Reply

Lupus and Celiac

I have hypothyroidism,lupus, bypolar, panic attacks, extreme anxiety.. And now feeling like I have celiac , on line it says that celiac is a type of autoimmune...

I have hypothyroidism,lupus, bypolar, panic attacks, extreme anxiety.. And now f...

1TeiaMarie

•10 years ago

7 Replies

Migraines

I recently got diagnosed with lupus I'm awaiting my appointment with a rheumatologist....I have a question I've looked at several different sites since my...

I recently got diagnosed with lupus I'm awaiting my appointment with a rheumatol...

anniec1973

•10 years ago

3 Replies

Photosensitive, isn't it ever go away?

To the photosensitive lupies out there, who is too sick and effective by the sun and fluorescent light? I'm just became extremely photosensitive 2 years ago, I...

To the photosensitive lupies out there, who is too sick and effective by the sun...

kimc

•10 years ago

2 Replies

Beginner’s Guide to Best Book Review Writing

A book review is generally written about one of the best books. It is like giving their opinion about that book. It is similar to giving reviews when a new...

A book review is generally written about one of the best books. It is like givin...

sksknpkki1986

•10 years ago

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How many pills do you take a day? Meds and/or supplements and over the counter meds?

gazorpf

Lupus Florida•11 years ago

4 Replies

Has anyone changed rheumatologists for treating your lupus?

What made you change? Did you tell the doctor you were leaving or did you just go? If you did not tell the doctor, why not?

What made you change? Did you tell the doctor you were leaving or did you just g...

gazorpf

Lupus Florida•11 years ago

7 Replies

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Posts - Lupus Foundation of Florida | HealthUnlocked

Lupus Foundation of Florida

Anyone with Lupus experience upper back pain, scapula pain, and upper arm pain?

Just Diagnosed

Lupus?

My partner the vaccine and lupus

Malar Rash?

irregular heartbeat

Hiding my lupus.

Trouble

Benlysta anyone?

Research Opportunity!

Feeling lost - Breach of Data Protection, Breach of Patient Confidentiality what does this really mean? Does it really mean anything anymore

Shaking not getting better?

Can it be?

Is it really Lupus

curious

Not Sure How to Title This

Retinal holes !!

Green Juice

Hi, only me!

Hydroxychloroquine and retinal problems !!

Lower back and side pain

Lighting

The dangers of contracting hepatitis b while having lupus what is the ddanger

doctor recommendation

Lupus and Celiac

Migraines

Photosensitive, isn't it ever go away?

Beginner’s Guide to Best Book Review Writing

How many pills do you take a day? Meds and/or supplements and over the counter meds?

Has anyone changed rheumatologists for treating your lupus?

Search posts

Latest poll

Which conditions do you have along with lupus?

Archive