My lovely husband, who is a 51 year old non smoker and always exercised has been diagnosed two months ago with stage IV bi-lateral adenocarcinoma (6cm central mass and small tumours throughout his lungs) and has two brain mets. He had 5 days of whole brain radiotherapy in December and started chemo- pemetrexed / cisplatin on January 5th as they were too busy to start it before Christmas. He had no side effects from the chemo first time round, 2nd session is this Tuesday.
He has tested positive to ALK markers, so Crizotinib may be used at some point his oncologist said ( He is being treated at Northampton General).
All his tumours are inoperable (head and lungs).
I am struggling to deal with it emotionally, he has been brilliant!
Just trying to find other people who have adenocarcinoma which has spread to the brain to see if there are other options for treatment.
Sorry to bother you all, but I'm
Desperate and terrified.
Thank you xx