Hi everyone, just an update on the latest treatment. I thought after 7 or 8 spins of radiotherapy this was going to be easy, but I was too quick. I didn't get any skin burn or rashes, but as the wheel spun round more doses I started to get really tired. Not the total wiped out feeling that I've had from chemo but I felt really fatigued and had difficulty get my head off the pillow some mornings. I also have oesophageal radiation and this is quite painful like really bad trapped wind! And difficulty swallowing food. I have been given an antacid mixture which also numbs the gullet and take it 15 minutes before eating but I'm not finding it really helping, so I'm sticking to eating lots of soft foods etc. the treatments finished on Friday so I'm hoping things will improve this week so I can get out golfing again next week. My next appointment is not for another 9 weeks so I'm going to try and enjoy this treatment free time. Especially as both my children have told me in the past 2 weeks that I am going to be a grandad again next January and February so that will make me focus on keeping going.
Mind you if the weather doesn't improve soon up here in Scottishland I will be heading of to warmer climes for a week or three.
And congratulations on your happy news. Being a grandparent is just the best isn't it and it will give you a very happy focus and goal to aim for.
I hope today finds you a little less fatigued and fingers crossed you are managing to get some good quality sustenance down you in spite of your discomfort. My husband has had to satisfy himself with watching golf on TV as he hasn't been well enough for a number of weeks to go out and play. We did notice the weather in Scotishland was pretty abysmal! Hope it perks up soon for you.
Thanks Netty, yea grandkids are fun. We have 4 at the moment but 2 are in Sydney and 2 in Singapore. At least next year one of them will be born in Aberdeen so we will be able to spoil this one even more.
Cheers for your good wishes and as my grandson in Sydney says '' Grandad today is going to be a good day''
Your due a positive turn on the roulette wheel soon. Congrats on the new family members, hope they are a delight to you.
Sorry to hear about the effects of the radiotherapy. Fatigue can be one of those consequences that really knock people, hopefully the next 9 weeks will give you time to get your strength up.
Soft diet sounds like a good approach, if you haven't had any input from a dietician it might be worth asking at Maggie's in Aberdeen as they may have someone based at the centre,
best wishes
Lorraine
obo Information & support team
Hi Lorraine, I've been slightly better today but I think I'll pop into Maggies this week anyway as I haven't been in for a while and I'll ask about the diet.
Hope you're getting less travel and more time at home,
I have an x-ray every 6 months at the moment,the next one is next month and I will go and see the consultant the same day.I am feeling well so I am hoping the x-ray will be clear. Thanks for asking,best wishes.
Hi Rab, You enjoy your 9 weeks of freedom. enjoy your golfing. I don't know if you remember me telling you they found a secondary cancer on m y adrenal gland. Well I have had my op and at the moment cancer free. I am seeing the oncologist regarding adjuvant chemotherapy next week. I only hope I can tolerate the chemo this time, as it didn't agree with me when I had the pneumonectomy. Anyway like you I will persevere. You take good care of yourself. xx
Hi there Jilly, yes I remember saying that I hadn't heard of adrenal cancer. Hope you are not to sore after your op, have they said which chemo you are having this time? If it's Cisplatin then ask for the sister drug Carboplatin, it's not so harsh and just as effective I believe.
Hi Rabbie, Wonderful news that you are going to have two new grandchildren! I'm new on here, but I've read some of your posts, and wish you well.
My daughter is in her last week of radiotherapy (Edinburgh) and she is having the same problems swallowing. My cousin recommends freezing pineapple juice into ice cubes and then trying to swallow them - it worked for her.
Hope it gets better soon so that you can enjoy your nine weeks before the next round. Might need to join your children abroad to get good weather for your golf though ...
Thanks for the info, but luckily my gullet is starting to heal and I only get occasional pain when eating now, mind you I haven't had my curry yet...
It sounds like your daughter has had radical chemo and radiotherapy so hopefully they can eradicate the cancer or like Janey have surgery to clear out what's left. Tell her to stay strong.
Rab
P.S I haven't been fit enough for golf yet but next week is my aim.
Well I really hope the weather is good for when you are ready to get stuck in.
So it didn't take too long for your throat to heal then? That's good. I hope you recover quickly from the tiredness too.
Yes, what we need is for 'treatable' to become 'curable' and then 'cured'. She can't have surgery, but her chances have improved with the chemo and radiotherapy.
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