Posts - Lung Cancer Support | HealthUnlocked

Lung Cancer Support

3,999 members • 2,169 posts

All posts for September 2018

Helpful links to information shared here

Please post the information on what the "Living Room" is and how to access it. I may have asked about this before but I can't find the info now. If we can...

Please post the information on what the "Living Room" is and how to access it. I...

Spainy

•6 years ago

2 Replies

Update. Let’s take John English’s fight for best treatment viral.

This will s the info you need to contact the CEO. PLEASE take a moment and send him an email. —————— Please help this patient get the treatment he needs. His...

This will s the info you need to contact the CEO. PLEASE take a moment and send ...

Denzie

Moderator•6 years ago

7 Replies

Post VATS pain

How does one deal with post VATS pain? It has been 16 months since removal of RUL. Why due I have this residual pain?

How does one deal with post VATS pain? It has been 16 months since removal of RU...

Stillbiking

•6 years ago

8 Replies

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Stress

Morning everyone. I’ve just read Lisa’s post about her Dads IMRT being denied for the final time and I tried to assure her that standard rads are good as well...

Morning everyone. I’ve just read Lisa’s post about her Dads IMRT being denied fo...

ynkefan08753

•6 years ago

15 Replies

IMRT denied final time today + Abraxane, Carboplatin, Keytruda question

I figured I would do a brand new update post in one spot. To update on my dad’s insurance denial, the external review for IMRT on his chest tumor that is...

I figured I would do a brand new update post in one spot. To update on my dad’s ...

Lisam81

•6 years ago

31 Replies

Introductions - Happy to be here!!

Hi everyone, I wanted to take a moment to say hello! My name is Danielle Hicks and I oversee patient services/programs at the ALCF. Thank you all for sharing...

Hi everyone, I wanted to take a moment to say hello! My name is Danielle Hicks ...

danielleGO2

Partner•6 years ago

5 Replies

IMRT appeal denied for a SECOND time - case closed now

Update from my previous post - the patient appeal I did for my dad with the 4 page letter and 28 pages of his medical records plus the letter of medical...

Update from my previous post - the patient appeal I did for my dad with the 4 pa...

Lisam81

•6 years ago

31 Replies

Hello!

Hello and Happy Monday! My name is Michele Zeh I work in the Patient Services and Programs within the Bonnie Addario Lung Cancer Foundation working with...

Hello and Happy Monday! My name is Michele Zeh I work in the Patient Services a...

Michelezeh

Partner•6 years ago

7 Replies

New to the community

Hello everyone! I am a nurse within the Bonnie Addario Lung Cancer Foundation working with patients, family members and hospital team members with any lung...

Hello everyone! I am a nurse within the Bonnie Addario Lung Cancer Foundation w...

KimGO2

Partner•6 years ago

7 Replies

so sad but very true, hospitals kills more than cure .

My Husband has had cancer in his lung for 8 months, he only had the surgery 5 weeks ago and 3 days after the surgery he got an infection in his lung 3 more...

My Husband has had cancer in his lung for 8 months, he only had the surgery 5 we...

joeyroe

•6 years ago

11 Replies

Tarceva Hair

Has anyone figured out how to straighten your Tarceva hair? Ive tried lots of things but still my hair is so kinky. I used to have thin straight hair and now...

Has anyone figured out how to straighten your Tarceva hair? Ive tried lots of th...

cammfam4

•6 years ago

4 Replies

Question about post surgery X-ray

Hi, just an up date and question. My surgery for ULL was in March. They said they got it all and did not have to have any further treatment. I just had an...

Hi, just an up date and question. My surgery for ULL was in March. They said th...

Lucieee

•6 years ago

8 Replies

The Lung Cancer Registry

Hello Lung Cancer Support Community! I would like to introduce myself. I am the Director of the Lung Cancer Registry. I'm here to help with any questions...

Hello Lung Cancer Support Community! I would like to introduce myself. I am th...

SandraSSGO2

•6 years ago

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Maintenance chemo

So I have t updated in a long time (been lurking) but I’m back with a question. After nearly dying from an adverse reaction to Keytruda, my mom made a full...

So I have t updated in a long time (been lurking) but I’m back with a question. ...

Cici145

•6 years ago

7 Replies

Great CT report. Nearly 8 years out.

Saw my oncologist today. Good news. The nodule that showed increase size on last November’s CT after I had pneumonitis is unchanged in 3 consecutive three...

Saw my oncologist today. Good news. The nodule that showed increase size on last...

Denzie

Moderator•6 years ago

41 Replies

Have become unstable 2 years since treatment

I am 2 years post surgery and treatment with chemo and radiation. 2 months ago I have become very unstable and have had a doctor tell me that this can happen...

I am 2 years post surgery and treatment with chemo and radiation. 2 months ago ...

jars1943

•6 years ago

4 Replies

Have become unstable 2 years since treatment

I am 2 years post surgery and treatment with chemo and radiation. 2 months ago I have become very unstable and have had a doctor tell me that this can happen...

I am 2 years post surgery and treatment with chemo and radiation. 2 months ago ...

jars1943

•6 years ago

3 Replies

Which should I choose? CareFirst (BCBS) vs Aetna vs Cigna vs UnitedHealthcare

The company I work for has been bought out, because of that, I need to enroll in another health plan in a week or so. The choices are- . CareFirst (BCBS) ....

The company I work for has been bought out, because of that, I need to enroll in...

weisheke

•6 years ago

9 Replies

Insurance denied IMRT!

Has anyone ever been denied IMRT by insurance?! It has now been several weeks since we found out my dad’s tumor pressing on his heart is no longer stable and...

Has anyone ever been denied IMRT by insurance?! It has now been several weeks s...

Lisam81

•6 years ago

40 Replies

Clavical lymph node suspect on PET done on the 7 th- waiting on biopsy results done on the 13 th —

Hi good people, To start , I’m just gonna pick up where I left off my last post,, Stage 111a non small cell squaumos carcinoma diagnosed early March 2018 -...

Hi good people, To start , I’m just gonna pick up where I left off my last post...

Getoutofme1239

•6 years ago

3 Replies

Treatment

Could some one tell me if during treatment they felt awful all the time. My nephew is ready to quit his chemo because it is making him so sick and with pain....

Could some one tell me if during treatment they felt awful all the time. My neph...

gibdonnalee

Community Superhero•6 years ago

12 Replies

Tygrisso

My Dad is stage 4 and doing Tygisso ( not sure how to spell it) he started feeling like it’s eating away at his bones. His next appointment is 2 weeks away,...

My Dad is stage 4 and doing Tygisso ( not sure how to spell it) he started feeli...

litoreggie

•6 years ago

7 Replies

Keytruda

Anyone on Keytruda for lung cancer

kookieannie

•6 years ago

10 Replies

Popliteal vein thrombosis...really??

because the pneumonia I’ve been fighting for weeks isn’t ebough ...someone thought I needed a blood clot...luckily it’s behind my knee and hasn’t broken off...

because the pneumonia I’ve been fighting for weeks isn’t ebough ...someone thoug...

ynkefan08753

•6 years ago

11 Replies

Oregon Patients Access to Best Care May Be Denied. Call to Action

This is a copy of a blog written by my friend Janet Freeman-Daly. It’s important that they locate patients who can testify as to how genomic sequencing has...

This is a copy of a blog written by my friend Janet Freeman-Daly. It’s importan...

Denzie

Moderator•6 years ago

2 Replies

My bout with depression.

Hi all , been a long time since I've been on here. I've been going through a bad time with depression and anxiety. It's a combination of a few things going on...

Hi all , been a long time since I've been on here. I've been going through a bad...

gibdonnalee

Community Superhero•6 years ago

29 Replies

Quarterly Report

Since I am in the business of living, I thought I would give my quarterly report. I do get a scan every three months since I was diagnosed with NSCLC in...

Since I am in the business of living, I thought I would give my quarterly repor...

Ncpoet

•6 years ago

26 Replies

Yesterday was my 10th PET/CT in 2+ years!

Today I saw my doc to go over scans and have treatment. Happy to report that all remains stable, no avid SUV uptake noted anywhere and primary node/scar down...

Today I saw my doc to go over scans and have treatment. Happy to report that all...

PegD

•6 years ago

19 Replies

Anyone familiar with Navelbine?

Haven't posted for awhile. Husband who was inoperable with NSCL had chemo & radiation that failed in 2016. Has been on Opdivo for one year since June 2017....

Haven't posted for awhile. Husband who was inoperable with NSCL had chemo & radi...

janiceowens1957

•6 years ago

3 Replies

Lymph node metastasis

Good afternoon! I have a question that maybe someone here can answer since I won’t see my onc until next Wednesday when I have my 3 month scan. Does anyone...

Good afternoon! I have a question that maybe someone here can answer since I won...

ynkefan08753

•6 years ago

18 Replies

Posts - Lung Cancer Support | HealthUnlocked

Lung Cancer Support

All posts for September 2018

Helpful links to information shared here

Update. Let’s take John English’s fight for best treatment viral.

Post VATS pain

Stress

IMRT denied final time today + Abraxane, Carboplatin, Keytruda question

Introductions - Happy to be here!!

IMRT appeal denied for a SECOND time - case closed now

Hello!

New to the community

so sad but very true, hospitals kills more than cure .

Tarceva Hair

Question about post surgery X-ray

The Lung Cancer Registry

Maintenance chemo

Great CT report. Nearly 8 years out.

Have become unstable 2 years since treatment

Have become unstable 2 years since treatment

Which should I choose? CareFirst (BCBS) vs Aetna vs Cigna vs UnitedHealthcare

Insurance denied IMRT!

Clavical lymph node suspect on PET done on the 7 th- waiting on biopsy results done on the 13 th —

Treatment

Tygrisso

Keytruda

Popliteal vein thrombosis...really??

Oregon Patients Access to Best Care May Be Denied. Call to Action

My bout with depression.

Quarterly Report

Yesterday was my 10th PET/CT in 2+ years!

Anyone familiar with Navelbine?

Lymph node metastasis

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