Yesterday was my 10th PET/CT in 2+ years! - Lung Cancer Support

Lung Cancer Support

4,064 members2,213 posts

Yesterday was my 10th PET/CT in 2+ years!

PegD profile image
PegD
19 Replies

Today I saw my doc to go over scans and have treatment. Happy to report that all remains stable, no avid SUV uptake noted anywhere and primary node/scar down to 9.7 mm - it continues to shrink. Blood tests all good, but my CA 19-9 rose to just outside normal. This is the marker that fluctuates for me. Up then down and repeat. It was noted that a very small 5 mm spot was detected next to primary. Too small to get a reading on PET so we will watch tumor markers to see if they continue to rise. If they do, will have another CT in 8 weeks. I had my 24th Cyramza infusion today and will stick with this plan for now. Doc and I feel confident that there is nothing to worry about.

Back to the #1 job at hand....living and loving my life! 💓

Written by
PegD profile image
PegD
To view profiles and participate in discussions please or .
Read more about...
19 Replies
Denzie profile image
DenzieModeratorVolunteer

Yeah, Peg! Overall a good report. I send hope that the 5mm bugger is a reaction to allergens or similar. I’ll be watching for an update.

Mytwins02 profile image
Mytwins02

God Bless🙏

jpoehlmann profile image
jpoehlmann

Great to hear!

SusieJo1948 profile image
SusieJo1948

I'm happy for you keep it up. Love susie

Ncpoet profile image
Ncpoet

Congrats! Life is good!

anrean profile image
anrean

YAY, Peg!! It is nice to hear a good report - you deserve it!

Getalife18 profile image
Getalife18

So awesome !!! Such fanstastif news !!

Spainy profile image
Spainy

Good for you Peg! We share in your hope and happiness.

Ruthie1950 profile image
Ruthie1950

That’s what we all want to hear! Great news!!

Memaw0100 profile image
Memaw0100

That’s good news. Congrats! God bless!

I hope the 5 mm spot shrinks down to nothing.

Lovey1000 profile image
Lovey1000

What is your stage cause they pulled a lil cancer out of my brain and radiate the emptiness and then I wait till it spreads again

PegD profile image
PegD in reply toLovey1000

I was diagnosed stage 4. No mets outside the R lung cavity. Metastasis to pleura has resolved as well as lymph involvement. I hope you continue to do well with radiation and they can keep those mets at bay.

scifiknitter profile image
scifiknitterBlogger

Hooray Peg! So glad you had such good news.

Anita

ynkefan08753 profile image
ynkefan08753

Yay! Let’s have a good news party lol. No one ever throws a party for a good scan but I think we need to start. Even if it’s an online party. These things should be celebrated! It’s no easy task living with lung cancer ...especially since there’s no one wearing white ribbons and cleats in the NFL like they do with breast cancer 🙄. Not that I’m saying the breast cancer cause isn’t important. It absolutely is...but the number one cancer killer is lung cancer killing more people than breast, colon and prostate cancer COMBINED. We get a bad rap because everyone assumes we’ve all done this to ourselves by smoking. So not true. I met a nurse a few weeks ago who’s 23 year old non smoking daughter was just diagnosed with stage 4 LC. It can happen to anyone and fighting it is like climbing up a mountain with someone throwing snowballs at your face. Because most lung cancers are incurable, our only goal is to live “longer” than what they’re expecting. I guess I just get a little tired of all the “pink” when there are other cancer fighters out there who could use a little encouragement. Anyway, I rambled enough. Congratulations on your good news and I know they good news will keep on coming. Be well!

GMC1 profile image
GMC1 in reply toynkefan08753

I agree wit you about the stable celebration. My husband just got a stable scan after 5 years of Proton, Opdivo, chemo, Keytruda, and chemo with scans/Ct and Pet always reporting some sort of change in shape or size. Two weeks ago the Ct scan showed him stable after taking 3 months of Opdivo again. He had some difficulties after taking the Opdivo the first time several years ago when it was given every two weeks. So it was discontinued. Now after chemo again and Keytruda not working, they decided to try Opdivo again. It is now given once a month and he is experiencing the intestional difficulties, but living with it. He feel pretty good otherwise after having 14 days full brain radiation. The tumor is stable. We will take it!

ynkefan08753 profile image
ynkefan08753 in reply toGMC1

Good for him! See? We need to celebrate these things!! These are huge milestones for us that wouldn’t have happened a few years ago. Most of us should be dead and we’re not so....parties for everyone! I told my husband that I want an 80’s party for my 50th birthday. It’ll be next December (not this one coming up but the year after) and as long as I’m not sick or in the hospital...I want a party. Haven’t had one since I was 10. I want everyone dressed in 80’s gear and nothing but 80’s music. The clothes were atrocious but the music was the BEST! I’m hoping my brother can pull some strings and get Jon Bonjovi to stop by. They’re former neighbors. That would make my day. Hell, that would make my life lol.

GMC1 profile image
GMC1 in reply toynkefan08753

Sounds like fun!! Always important to plan fun things ahead, looking forward and finding reasons to wake up. I'm planning a fishing trip for him in April. He is now motivated to go to respitory therapy and try to get off oxygen and his balance back. Glad he tried Opdivo again.

Ncpoet profile image
Ncpoet

You keep on living, girl! The more of us who do will help the horrible statistics for our cancer become a thing of the past. Survival is the name of the game and the cure is the grand prize.

Not what you're looking for?

You may also like...

Waiting for Pet Scan results, so difficult in coping

I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom...
Guy59 profile image

Small cell Pet/CT

Hi, I am looking for advice. In Dec 2014 I felt so tired I went to my gp. I discovered that I had...

Liver Biospy completed on 11-09-2016 CT/PET Scan Results are in.

Hello everyone, I completed the liver biospy on 11-09-2016. They took three samples from my liver....
Kym105 profile image

My latest CT scan results

Had my CT scan this past Thursday, results posted this morning, I see my oncologist tomorrow to...

Biopsy results following CT and Pet

Thoughts on how to assess this? Had routine CT scan in November and there was slight changes to...
kri312 profile image

Moderation team

See all
Maureen-GO2 profile image
Maureen-GO2Administrator
AmyKamp profile image
AmyKampAdministrator
danielleGO2 profile image
danielleGO2Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.