I figured I would do a brand new update post in one spot. To update on my dad’s insurance denial, the external review for IMRT on his chest tumor that is wrapped around the SVC of his heart was denied today as well. This was the final appeal we had and now have no more. To say I feel defeated is an understatement. I tried so hard to get my dad IMRT and it failed. The first request by dr was denied. The appeal was denied. The peer to peer was denied. The 28-page patient appeal I wrote was denied. And now the external review today was denied stating “we agree that IMRT is best, however it is still denied”, leaving his radiation oncologist confused at the meaning of the denial wording. I have done a social media campaign, Florida Blue Cross has contacted me directly based on my social media posts, but in the end nothing. I have contacted the Florida insurance commissioners office, which apparently didn’t get anywhere despite the case opened and his help. I have tagged local news stations, written state representatives and was in the process of consulting attorneys. I have asked for financial aid from the center, nothing. But time is now up. Today we drove from Orlando to Moffitt for my dad’s latest scans and what was supposed to be his Alimta maintenance infusion. His last scan showed his chest tumor wrapped around his svc of heart, was 4.9 from 4.2 cm. They didn’t fail him on chemo yet last scan. But today, since fighting for IMRT, it has gone from 4.9 to 5.6 cm and both his adrenal tumors have increased in size, making it a 37% increase in growth and a critically dangerous tumor growth increase onto his heart while fighting insurance for IMRT. Alimta maintenance has now failed.
We were informed this is now critically important he start radiation or they said he will die from the tumor collapsing the SVC. He also was pulled out of the clinical trial today. It was after all this we were informed by his radiation oncologist that the IMRT external review appeal was denied. This leaves my dad only standard radiation to accept for a tumor that is wrapped around the vein of his heart and all the risks of standard radiation next to critical organs. I am angry and I am sad and my dad is scared. I am appalled Florida Blue has treated my dad this way, even admitting they knew IMRT was better but still wouldn’t approve it. We have no choice now but to accept standard. 😔
Since he has now failed chemo, with no further metastasis but 3 out of his 4 cancer sites have a 37% total increase, the next treatment per his oncologist for second line is Abraxane, Carbo and Keytruda, but it won’t start until 2 weeks after his last radiation treatment of which he will have 15 standard 😔 radiation treatments. Does anyone have any experience with this combo? Or any info on it? This all just happened today so I am going to be researching it as well, but I am interested in any firsthand knowledge on it or any opinions at all. He was also prescribed Reglan today to see if that helps his nausea and ability to keep food down with possible gastroparesis. I appreciate everyone’s time and help in responding to my earlier posts!! 🧡 Unfortunately, insurance has failed my dad and I am sorry for this and everyone who this has ever happened to and will happen to. It is wrong on so many levels.