Thigh wraps sinking south

[Loramay]

Hi I am wondering if anyone else has the same problem as me.I have secondary lympodema and lipoedema in both leg's and currently wear easy wrap before that sigarus and with both my thigh wraps will not stay put no matter how tight or slack I wear them and after a few hour's are covering my knee wraps. With trousers they are impossible the first time I need the loo they end up coming down with either my trousers or my knickers so currently I have given up wearing them. I haven't seen my lympodema clinic for over a year but it can't be the measurements as I was measured by two different clinics for the first and second different makes. I am hoping that someone has an idea as how to overcome this. Thanks

[Angelil]

Hello there,

I wear made to measure cycling shorts which never fall down! Maybe these would be an option for you? Mine end at the knee but I do have leggins down to the ankle that I wear occasionally which would support the knee area however they are difficult to get on.

Hope you get it sorted 👍

[0678 in reply to Angelil]

Hi.Are these cycling shorts compression garments?

I tried to order those, but I was told I wouldn't be able to get into them.

I have this exact problem, all compression wraps fall, the tigh parts and the knee parts completely off.

I have now ordered tigh high compression socks and will not only put the lower leg portion on.

I tried without the socks, which resulted in a massively swollen, painful feet.

[0678 in reply to 0678]

*will ONLY put the lower leg wrap portions on.

[Loramay in reply to Angelil]

Where did you get your compression shorts from I am in the UK

[Angelil in reply to Loramay]

I have them from my lymphoedema nurse (nhs). They are made to my measurements. I did try compression underwear/ shorts to start with but they weren’t a good fit so the made to measure garments are much better x

[Angelil]

They are compression shorts that are made to measure. It depends on individual circumstances but I find them fine to put on and they stay up so thought it may be worth a suggestion. I did try compression underwear/ shorts beforehand but my body dimensions meant that they weren’t a good fit but that may be worth a go too x

[0678 in reply to Angelil]

Are the measurements more loose than normal? I, too, would need them tailored to me.

My lymphedema is in the final stage, the so-called elephant-disease (elephantiasis), where the changes are irreversible and massive. (I'll try to attach a photo of my gigantic knee.)

I have found compression garments to help with the pain. Painkillers rarely do.

These cycling shorts sound like a good idea, and possibly a solution to also keeping compression socks up.

My skin gets irritated with silicone (I've been told it is not possible to be allergic to silicone, but my body is doing a rather convincing imitation 🤪.)

Picture of a massive lymph swelling on a knee of a person with elephantiasis disease.