Mobility & MLLB of lower legs


Next week I am starting 3 weeks of MLLB of my lower legs. Can anyone give me advice & tell me what to expect re. mobility, pain, etc.

This probably seems rather trivial but after so much surgery & other treatments this one is very new to me. I have had my "fat right leg" for 16 years & after scans told "it's a lymphatic problem, nothing can be done you'll have to learn to live with it".

Thank you.

Cathy x

4 Replies

  • Has your clinic given you an idea of what products they will be using? I use Coban2 on my clients - really easy to wear and they continue normal life - work etc. There can be difficulties if the feet are a problem, in which case, they take a week or so off work. When the legs reduce volume, I measure them for smaller garments. Are you getting manual lymph drainage too?

  • Hi Catwalk40

    Multi-layer Lymphoedema Bandaging is used to try and reduce the swelling in your leg/s. It is the intensive part of management of Lymphoedema before you go into compression hosiery. The idea is that the bandages can be changed daily, or several times a week, (depending on the type used) as your legs reduce in volume. There should be no pain involved, your legs will feel comfortable and supported. You will be expected to exercise to your abilities in the bandages to encourage maximum lymphatic flow. You cannot drive in some types of bandages and need to consider footwear as it is unlikely you would be able to get your normal shoes on. If you have your limb volume taken before and at the end of treatment you will be able to see how much volume you lose. Patients often say, "it was fine at first, but then the bandages started slipping down". Well that's great, it means the leg is getting smaller! Good luck and do report how you get on.

  • Hi Cathy Catwalk

    I had the very treatment this time last year. My right leg reduced from 55% to 23% - total of 3litres fluid - gone - was worth it.

    I found it odd but manageable:

    I went to hospital mon-fri for 3 weeks & twice I think in the fourth week . Tiring doing that every day - had my shower at hospital every day as nurse removed bandages, I had my shower, lymphatic massage & bandaged up again -2 -2.5hrs.

    You need to think about clothes - I couldn't get trousers on - I bought a couple of wide dresses (cheap)- a bit like ones a lot if people wear on holiday

    M&s stay up stockings are good for putting over top

    I wore a pair of my other halfs trainers as couldn't get mine on - I wear 6/39 and wore 9/43 - was a struggle -

    It looks like you have a broken leg - people were very sympathetic on the bus / I felt like a fraud as not painful during the day - achy bit you get used to it.

    Not being able to bend is awkward but ok

    Not painful at night but my leg ached ++++over night and I had too get up several times in the night and walk around just to get the blood moving - also took paracetamol a few times. (I have a very god pain threshold - 2 babies & no pain relief). Would trade a couple of nights sleep for results anytime.

    I was told that I had to walk for 30-40 minutes every day - I was very slow to start with but was run/hobbling got bus by the end...

    I was very tired during this month

    Loved my new leg afterwards - v v emotional time

    Don't know if you have ever had a broken limb but afterwards I imagine it's the same. I am now 49 and I run for exercise. I found running v hard for a couple of weeks - your muscles aren't so strong I guess but ok after a couple of weeks

    Good luck & let us know how you get on

    X Debi

  • Hi Cathy

    I forgot to mention in post above;

    Definitely can't drive

    I had to take amonth of work, I have a job where I could work a bit from home but I was at hospital every morning, & that i was too tired anyway. I wouldn't have liked my work colleagues to see me like that as I had had cancer 2years before so only just getting treated 'normal' again

    Also you have to elevate leg when sitting which is difficult to do all the time at work

    It does feel strangely comfortable when all bandaged up

    Good luck

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