Hi All, my 10 year old son developed primary lymphoedema 2 years ago in his left lower leg. He had a lymphoscintigraphy done at the time which showed severely delayed uptake in left leg and normal uptake in his right. 5 months ago his right lower leg swelled and is now considerably bigger than his left. He had another lymphoscintigraphy shortly after the right leg swelled and basically the dye never left either foot. He goes to St Georges every three months and is measured for compression garments. i take him swimming 3 times a week and have been shown SLD. Kinesio taping doesn't work at all as the tape curls up within hours of application. He has pitting oedema in both lower legs and feet, upper legs now looking 'chunky' and both buttocks starting to jut out, i also suspect abdominal lymphoedema. He can't really run anymore and sometimes limps when walking. Basically, everything has accelerated so quickly in the last 5 months. i'm desperate to do more and wondered if anyone has trained as a therapist to treat their own child. i work full time so can't go on an extended course. i am also a nurse. i've checked online and it looks pretty expensive and as I don't work in the field i worry that i may get a lot of theoretical knowledge (which I already know a lot of) and not enough practical experience to treat my son successfully. Any and all advice gratefully received.
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