Hello, I have my first appointment at lymphoedema clinic next month and I am wondering what to expect.
I have swelling in both legs which has come on gradually over the years. Left calf is the worst as had a blood clot (not deep vein) twenty years ago and swelling started from then on. Left leg aches and has "heavy" feel to it. Skin is shiny and flakes a lot on shin area. Leg is discoloured. Practice Nurse at GP's has referred me to clinic following GP treating me for cellulitus in left leg. Nurse said she thought it wasn't cellulitus at all as leg not hot, but thought it could be lymphoedema. Have frightened myself by "googling" lymphoedema, so just wondering what the outlook is likely to be. Thanks.
I think a good start would be to contact the Lymphoedema Support Network lymphoedema.org. They also gave a telephone advice line, details on their website. Also look up lymphoedema on the NHS Choices website. Both those will give balanced information. Everyone's lymphoedema affects them differently. Mine is a nuisance (below knee, both legs feet and since childhood - I have a brother and sister with it as well). We all lead very full lives and all get excellent NHS treatment (although that wasn't always the case). The main thing to remember is that everyone is different and some do have more difficulties than others. Most "lymphies" I know manage things really well.
Thank you for that AnneBury, I will look into your recommendations.