I need advice regarding what is recently going on with my leg. I am 29 years old female. Since March I started having strange sensations in my left leg's calf, like slight tingling a couple of times a day (no pain) and when doing exercises like calf raises - standing on toes and back down - there is a prominent tiredness of the left leg compared to the right one. In the beginning of summer, I started noticing a slight swelling in the ankle, foot is normal. Swelling almost does not have pitting, maybe if holding a finger for a long time, there might be slight pitting. The swelling is soft and skin is unchanged. This swelling is very mild, gets a bit less after night rest but never goes away completely and returns immediately as I am on my feet. Leg gets tired when I need to walk a lot but sometimes it is tired also without much walking. It feels heavy and kind of "feels" clothes on it (normal leg does not "feel" clothes). Sometimes there might be pain under the knee area. Sometimes when there are pins and needles, it feels like the fever going through the whole body. I noticed burning sensation in the sun. Sometimes I feel pins and needles in the thigh. Interestingly, I can have pins and needles on the front side of the calf of the right leg too but it looks completely normal.
I was scared by all this and visited vascular surgeon. He did ultrasound of veins and found that the left leg has reflux of both great and small saphenous veins, the right one has reflux of great saphenous vein. These veins were not dilated. But his opinion was that these vein changes can't cause my symptoms and though it might be lymphoedema. He sent me to lymphoscintigraphy. The result was "symmetrical and normal passage of tracer in both legs"! Therefore, he did an absolutely stupid conclusion - you have lipoedema!
I am not fat and not prone to overweight, also lipoedema is ALWAYS bilateral but my problem is only with one leg. I do not trust this diagnosis and plan to continue investigations, I want to do leg MRI to visualise lymph vessels and actually see their structure. Will do blood test and check kidney, although internal organs would give bilateral swelling.
I also have lower back pain and think if any nerve issue can cause leg pain but it is usually not associated with swelling?
What do you think - does it look like initial stage of lymphoedema? Why lymphoscintigraphy was normal? Can it be imprecise in the initial stages? I read a lot of articles and one says - it can identify lymph stasis even if there is no swelling yet (subclinical stage), but another says that in initial stages it is prone to error.
Please help. What other investigations I may need?