Hello everyone. My son is 9 months old and has LE on his left leg (toes to hips), left hand and sometimes on the left side of his face. 2 days ago I've noticed tiny red spots on all his limbs. Its on his both calfs and both arms. Should I worry about it?
It doesn' look like a rash more like little spots just under the skin.
He recently started crawling, could that be a reason?
Please any advice would be great, I'm getting crazy here 
Where are you based slavka?
Is he irritated by the spots? Do you notice him scratching? If they persist over more than 3 days, get the doctor to have a look.
Thank you Lynora for your reply. We live in London. Regarding red dots my son doesn't seem to be bothered by it. No temp or any other symptoms. I just dont know why he got those dots. Looks more like tiny tiny dots of red ink under his skin.
Is your boy being looked after by the team at St Georges? Professor Mortimer and Dr Kristiana Gordon? If yes, you can always send them a copy of the picture and ask for their opinion.
Dear Lynora
You are absolutely right! I will do it straight away unfortunately we have long weekend now due to Easter Holiday so I cannot expect any reply until Tuesday. I thought maybe someone here have seen something like that before and can tell me what is happening.
Thank you Lynora for finding time to reply, it means alot for me
Hi slavka- as it is a holiday weekend, and to save you worrying, give NHS 24 a call, tell them about his history and the recent appearance of the rash, and ask if he should be seen at Gt Ormond Street.
Art bless him, hope you find out soon what it is.
Hi Slavka, I think the advice that Lenora has given you is great. I would always get rashes checked by someone who understands lymphoedema. From my experience the usual childhood rashes/ spots etc always seem more concentrated and more severe on the lymphoedema effected limbs. As a precaution make sure you keep his skin moisturised with a recommend moisturiser- we use double base cream but there are lots available from your gp/ lymphoedema nurse. Hope you find some answers soon so you don’t spend the weekend worrying. Xx
Hi Slavka,
Has your little boy's rash changed since you posted the photograph ?
I hope he's well.
Wendy
Thank you everyone for all your replies.
Dear Wendy, it has not changed at all. It's exactly the same since day one. I really don't know what to think. The good news is that Anthony will be seen at St George's this Friday - I will update this post after our appointment.
Once again thank you all for such a fantastic support 
Did they come up with a solution Slavka?
Hello again.
Right, so we have been seen by Dr Gordon and Anthony's therapist. Dr Gordon took a very close look at Anthony and it looks like there's nothing to worry about. We didn't get a clear explanation of what that really is. It could be caused by dry skin. We started using double base from today and will see if that helps.
A little bit. I do my best but it's not so easy. Every time I start he runs away :))
Good time to do it is when he’s chilling & ready for bed.
Thank you Lynora for all your replies, you are a real star here!
My son is at that age when even changing a nappy is a great challange. He just won't stay still, needs to explore everything and lying in bed it or on the floor is a wasted time in his opinion
I was shown how to do night time bandaging and I have to say it's fantastic. Is it normal that we get better results than by wearing garments during the day?
Yes, totally normal - all related to gravity - the fact that he's lying horizontal (unless he's part bat ( ), the bandaging is helping to move the lymph towards his abdomen - and as he is still so young, he will be breathing using his abdomen, so drainage is encouraged into the large collecting vessel (cisterna chyli).
talk with your dr and find a LE therapist for infants etc to guide you and help with you formula to restrict excessive sugars salts etc. best wishes....if crawling maybe a light PJ or clothing so less rubbing on flooring going nuts does not help... relax breathe
do the research ... handle the challenge and love your baby ....
The rash is gone. Since we use double base we have no more skin problems however I still have no idea what it was.
Thank you everyone for taking time to reply to me
Suspicion of primary lymphoedema
Has anyone undergone amputation with lymphedema?
Lymphoedema post dmx In neck 
Different subject. Does anyone have any idea whether a dislocated elbow can return to normal in say 6 - 8 weeks?
Advice please re my 10 year old.
