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Hi, I'm Laurelin & I'm new to the LSN!

Have Lymphoedema, Lymphedema, Overactive Bladder & Fecal Incontinence. Have an Osteopath for my Primary Care Physician, fortunately. Have a Urogynecologist too!! Would like to get a Lymphedema Physical Therapist to go to now that I know I have Lymphoedema.
Have Lymphoedema, Lymphedema, Overactive Bladder & Fecal Incontinence. Have an Osteopath for my Primary Care Physician, fortunately. Have a Urogynecologist too!! Would like to get a Lymphedema Physical Therapist to go to now that I know I have Lymphoedema.
Laurelin profile image
Laurelin
in LSN

Lymphoedema Service in Kent & Medway

During the course of our conversation I mentioned the numerous difficulties I have encountered since receiving my Bi Lateral Lower Leg Primary Lymphoedema diagnosis approximately 10 years ago.
During the course of our conversation I mentioned the numerous difficulties I have encountered since receiving my Bi Lateral Lower Leg Primary Lymphoedema diagnosis approximately 10 years ago.
Aliphant1964 profile image
Aliphant1964
in LSN

Fibrosis treatment

I have lymphoedema in my left leg since 2009, my thigh has been building up fibrosis which i can feel is spreading quite rapidly, it is now hard all over my thigh, even when rested. Is there any treatment or machine that helps get rid of it, treat it or slow the spread?
I have lymphoedema in my left leg since 2009, my thigh has been building up fibrosis which i can feel is spreading quite rapidly, it is now hard all over my thigh, even when rested. Is there any treatment or machine that helps get rid of it, treat it or slow the spread?
SamLymphie profile image
SamLymphie
in LSN
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Class 3 tights and reducing swelling

I have lymphoedema in my legs but it has become a lot worse in my right leg in the last year. I posted a few months ago about this problem and the replies were very helpful. It has been extremely difficult to find the right compression and I am desperate to reduce the swelling.
I have lymphoedema in my legs but it has become a lot worse in my right leg in the last year. I posted a few months ago about this problem and the replies were very helpful. It has been extremely difficult to find the right compression and I am desperate to reduce the swelling.
caroline111 profile image
caroline111
in LSN

Senations

Another member provided a link to The Lymphoedema Support Network, thankfully! I joined & here I am. I know I have this disease!! Am going to my Osteopath for a series of manipulations for this disease!!! Oh boy! Am so happy to find out why I feel this way!! What a Godsend!!! Thank you LSN!
Another member provided a link to The Lymphoedema Support Network, thankfully! I joined & here I am. I know I have this disease!! Am going to my Osteopath for a series of manipulations for this disease!!! Oh boy! Am so happy to find out why I feel this way!! What a Godsend!!! Thank you LSN!
Laurelin profile image
Laurelin
in LSN

Worried About Blue Badge Assessment

I have primary lymphoedema mainly in my legs and have applied for a blue badge as my walking is getting bad. I am quite stressed about the assessment I have to attend next week, as I understand it can be quite hard to succeed in getting a badge for this condition. Has anyone else had much luck?
I have primary lymphoedema mainly in my legs and have applied for a blue badge as my walking is getting bad. I am quite stressed about the assessment I have to attend next week, as I understand it can be quite hard to succeed in getting a badge for this condition. Has anyone else had much luck?
Stargazer1971 profile image
Stargazer1971
in LSN

Lymphoedema

Do you think that a Lymphedema Physical Therapist could also provide treatment for Lymphoedema?
Do you think that a Lymphedema Physical Therapist could also provide treatment for Lymphoedema?
Laurelin profile image
Laurelin
in LSN

What is the best weight loss diet if you live with lymphoedema?

In the next in our series of ask the experts Denise and Anita discuss diets, weight loss and healthy eating when you have lymphoedema. https://youtu.be/mr0eAg-YR5k
In the next in our series of ask the experts Denise and Anita discuss diets, weight loss and healthy eating when you have lymphoedema. https://youtu.be/mr0eAg-YR5k
LymphSuppNetwork profile image
LymphSuppNetwork
LSNin LSN

Lymphoedema

Anyone experience above condition,I have it 10 years after radiotherapy,is there anything that can be done, compressive socks do not work.
Anyone experience above condition,I have it 10 years after radiotherapy,is there anything that can be done, compressive socks do not work.
Uxp_d profile image
Uxp_d
in Prostate Cancer Network

Is low grade compression available in made to measure?

https://youtu.be/xo46T0ZBFyI #lymphoedemasupportnetwork #LSN #Lymphoedema #lymphedema #haddenhamhealth #juzo #compressionfrustrations
https://youtu.be/xo46T0ZBFyI #lymphoedemasupportnetwork #LSN #Lymphoedema #lymphedema #haddenhamhealth #juzo #compressionfrustrations
LymphSuppNetwork profile image
LymphSuppNetwork
LSNin LSN

Idiopathic lymphoedema

As an introduction I have had lymphoedema in both legs for 10 years and my mobility has gradually reduced but I can still walk short distances. Luckily my mobility scooter helps me get around Would love to hear from you all especially anyone with idiopathic lymphoedema
As an introduction I have had lymphoedema in both legs for 10 years and my mobility has gradually reduced but I can still walk short distances. Luckily my mobility scooter helps me get around Would love to hear from you all especially anyone with idiopathic lymphoedema
SAT46 profile image
SAT46
in LSN

Physiopod Deep Oscillation/ Hivamat

I’m a newbie here but recently wrote I’ve had idiopathic lymphoedema in both legs for 10 years. After diagnosis I was prescribed stockings and cream ! There’s no lymphoedema clinic where I live and have accepted my situation and got on with it.
I’m a newbie here but recently wrote I’ve had idiopathic lymphoedema in both legs for 10 years. After diagnosis I was prescribed stockings and cream ! There’s no lymphoedema clinic where I live and have accepted my situation and got on with it.
SAT46 profile image
SAT46
in LSN

Trying to help and live with lymphedema

I cannot find compression to fit my leg I have lymphedema in my right lower leg. I have had a vein closure which did not help. I was hospitalized with over 20 cellulitis infections the first 3 years until they started treating me with a maintenance dose of cephalexin. I take 500 mg two times a day. I
I cannot find compression to fit my leg I have lymphedema in my right lower leg. I have had a vein closure which did not help. I was hospitalized with over 20 cellulitis infections the first 3 years until they started treating me with a maintenance dose of cephalexin. I take 500 mg two times a day. I
MNM8674 profile image
MNM8674
in LSN

Estrogen Blocker - Anastrozole

Hello Teal Sisters, This is an ongoing dilemma for me would appreciate your input and personal experience with estrogen blockers. My Gyno/Onc wants me to take the above 1mg for 2 years my Oncologist doesn't recommend it because there's no proven data behind it in my type, I'm 3B, Low Grade, Endometrioid
Hello Teal Sisters, This is an ongoing dilemma for me would appreciate your input and personal experience with estrogen blockers. My Gyno/Onc wants me to take the above 1mg for 2 years my Oncologist doesn't recommend it because there's no proven data behind it in my type, I'm 3B, Low Grade, Endometrioid
Saintgermain profile image
Saintgermain
in My Ovacome

Lymphedema out of control after injury

I was diagnosed with primary bilateral lower leg lymphedema in 2018. I have controlled it fairly well with my custom flat knit compression stockings. Hower I in the past year I took a job that was much more sedentary, and found that my lymphedema was a little harder to control. (Puffiness in the ankle
I was diagnosed with primary bilateral lower leg lymphedema in 2018. I have controlled it fairly well with my custom flat knit compression stockings. Hower I in the past year I took a job that was much more sedentary, and found that my lymphedema was a little harder to control. (Puffiness in the ankle
GabbiD44 profile image
GabbiD44
in LSN

LLLT day 29

Our penultimate Lymphoedema Looks Like this - thank you to all the health care professionals who choose to help those with lymphoedema.
Our penultimate Lymphoedema Looks Like this - thank you to all the health care professionals who choose to help those with lymphoedema.
LymphSuppNetwork profile image
LymphSuppNetwork
LSNin LSN

Dr Catherine talks about social prescribing and lymphoedema

In the next in our series of "Ask the Experts" Dr Catherine talks about social prescribing and lymphoedema. https://youtu.be/mYMp8XBEVgY
In the next in our series of "Ask the Experts" Dr Catherine talks about social prescribing and lymphoedema. https://youtu.be/mYMp8XBEVgY
LymphSuppNetwork profile image
LymphSuppNetwork
LSNin LSN

Why do some people with lymphoedema see a specialist and others do not?

Dr Catherine and Anita discuss why only some of those people with lymphoedema see a specialist. https://youtu.be/2k9jt223s1k
Dr Catherine and Anita discuss why only some of those people with lymphoedema see a specialist. https://youtu.be/2k9jt223s1k
LymphSuppNetwork profile image
LymphSuppNetwork
LSNin LSN

HRT patches and lymphoedema

However, I have some mild swelling due to lymphoedema in these areas on one side and I know from scans that I have compromised lymph flow on the other side. Does anyone here with lymphoedema from below the waist to the thigh use oestrogen patches? If so I'd be interested to hear your experiences.
However, I have some mild swelling due to lymphoedema in these areas on one side and I know from scans that I have compromised lymph flow on the other side. Does anyone here with lymphoedema from below the waist to the thigh use oestrogen patches? If so I'd be interested to hear your experiences.
Perido profile image
Perido
in LSN

Cold water on leg

I had total knee replacement on my left knee 3 months ago. I still have fluid and pain. My leg has always had vericous veins. I am now getting the cold water down that leg and it looks like a dark rash is starting from knee down on back.
I had total knee replacement on my left knee 3 months ago. I still have fluid and pain. My leg has always had vericous veins. I am now getting the cold water down that leg and it looks like a dark rash is starting from knee down on back.
Readingpoodle15 profile image
Readingpoodle15
in LSN
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