Experiences with

Lymphoedema

Have Lymphoedema, Lymphedema, Overactive Bladder & Fecal Incontinence. Have an Osteopath for my Primary Care Physician, fortunately. Have a Urogynecologist too!! Would like to get a Lymphedema Physical Therapist to go to now that I know I have Lymphoedema.

During the course of our conversation I mentioned the numerous difficulties I have encountered since receiving my Bi Lateral Lower Leg Primary Lymphoedema diagnosis approximately 10 years ago.

I have lymphoedema in my left leg since 2009, my thigh has been building up fibrosis which i can feel is spreading quite rapidly, it is now hard all over my thigh, even when rested. Is there any treatment or machine that helps get rid of it, treat it or slow the spread?

I have lymphoedema in my legs but it has become a lot worse in my right leg in the last year. I posted a few months ago about this problem and the replies were very helpful. It has been extremely difficult to find the right compression and I am desperate to reduce the swelling.

Another member provided a link to The Lymphoedema Support Network, thankfully! I joined & here I am. I know I have this disease!! Am going to my Osteopath for a series of manipulations for this disease!!! Oh boy! Am so happy to find out why I feel this way!! What a Godsend!!! Thank you LSN!

I have primary lymphoedema mainly in my legs and have applied for a blue badge as my walking is getting bad. I am quite stressed about the assessment I have to attend next week, as I understand it can be quite hard to succeed in getting a badge for this condition. Has anyone else had much luck?

Do you think that a Lymphedema Physical Therapist could also provide treatment for Lymphoedema?

In the next in our series of ask the experts Denise and Anita discuss diets, weight loss and healthy eating when you have lymphoedema. https://youtu.be/mr0eAg-YR5k

Anyone experience above condition,I have it 10 years after radiotherapy,is there anything that can be done, compressive socks do not work.

https://youtu.be/xo46T0ZBFyI #lymphoedemasupportnetwork #LSN #Lymphoedema #lymphedema #haddenhamhealth #juzo #compressionfrustrations

As an introduction I have had lymphoedema in both legs for 10 years and my mobility has gradually reduced but I can still walk short distances. Luckily my mobility scooter helps me get around Would love to hear from you all especially anyone with idiopathic lymphoedema

I’m a newbie here but recently wrote I’ve had idiopathic lymphoedema in both legs for 10 years. After diagnosis I was prescribed stockings and cream ! There’s no lymphoedema clinic where I live and have accepted my situation and got on with it.

I cannot find compression to fit my leg I have lymphedema in my right lower leg. I have had a vein closure which did not help. I was hospitalized with over 20 cellulitis infections the first 3 years until they started treating me with a maintenance dose of cephalexin. I take 500 mg two times a day. I

Hello Teal Sisters, This is an ongoing dilemma for me would appreciate your input and personal experience with estrogen blockers. My Gyno/Onc wants me to take the above 1mg for 2 years my Oncologist doesn't recommend it because there's no proven data behind it in my type, I'm 3B, Low Grade, Endometrioid

I was diagnosed with primary bilateral lower leg lymphedema in 2018. I have controlled it fairly well with my custom flat knit compression stockings. Hower I in the past year I took a job that was much more sedentary, and found that my lymphedema was a little harder to control. (Puffiness in the ankle

Our penultimate Lymphoedema Looks Like this - thank you to all the health care professionals who choose to help those with lymphoedema.

In the next in our series of "Ask the Experts" Dr Catherine talks about social prescribing and lymphoedema. https://youtu.be/mYMp8XBEVgY

Dr Catherine and Anita discuss why only some of those people with lymphoedema see a specialist. https://youtu.be/2k9jt223s1k

However, I have some mild swelling due to lymphoedema in these areas on one side and I know from scans that I have compromised lymph flow on the other side. Does anyone here with lymphoedema from below the waist to the thigh use oestrogen patches? If so I'd be interested to hear your experiences.

I had total knee replacement on my left knee 3 months ago. I still have fluid and pain. My leg has always had vericous veins. I am now getting the cold water down that leg and it looks like a dark rash is starting from knee down on back.